What is Pulmonary Fibrosis
Diffuse parenchymal lung disease (DPLD), also known as interstitial lung disease, refers to a group of lung diseases, affecting the alveolar epithelium, pulmonary capillary endothe...
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Oxygen Concentrators
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My mother has PF and she has been cruising along for the past 4 years with this disease. In the past year she has gone from 3-4 on her concentrator and this has me worried. Mainly because the concentrator only goes up to 5 and partly because the increase in liters is a sign that her disease is progressing a lot faster now. My main concern is, will there be a machine that has a higher output, i.e. one with 5-7 liters? According to much of the research, my mom has anywhere from 4-6 years life expectancy and she has already lived for 4 years. By this standard she is doing pretty well. But, I can't help but wonder if the higher oxygen is a sign of the decline of her disease.
Posted on 07/05/09, 12:07 pm |
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hello i sometimes think that too when i look at my husbands machine well we are on 5 lts now so im not even sure what happens if he needs more noone has ever said come to mention it.now you have got me thinking will go and ask my dr now thanks for the post never really thought until now 
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Hi FionaCat09! I had a similar situation with my Mom. She refused to seek medical help for her coughing for years and then when she did was diagnosed with IPF. Unfortunately, she was too late to have many good years left. She died in October 2009 after only 18 months following her diagnosis. She was on the lung transplant list for 7 months but ended up being a donor not a recipient. She was on oxygen at 12-15 litres on her concentrator and the answer is "yes" they do go up higher. The in-home units were two 6 litre tanks tandemed together with an adaptor. I would suggest that if her oxygen needs have increased then it is a good assumption that the disease is progressing as well.
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my husband just got oxygen. The portable is an oxygne bottle that you put in a bag with a regulator. Is there anything better? which one is the best?
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another question: he just got the oxygen machine and says he can't breathe with the portable....has anyone had a problem with their machines.
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I have the big machine which I can fill my tanks from. I have been on 2 ltr since around March. So far I am having no problem with
that amount, nor do I have any problems with the tanks. I use them a lot when I go outdoors or shopping, or what ever I do outside the house. They are neither the ultimate, but looks like they are our now our best friend, and I am just so thankful I have it.
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