Pulmonary Fibrosis Support Group

just want you to know that duke University does NOT have an age limit..it depends on your basic health. My husband is 69 and the doctor said he would make a good candidate.

Thank you for that information....one wonders about all avenues. Please convey my best wishes to your husband.

Thanks, Unfortunately, my husband is in ICU with terrible breathing problems. He was only diagnosed in February and has gone downhill very very fast. Looks like we might investigate the lung transplant at Duke.

I'm sorry to hear he is in hospital.....I understand how he feels......you have my sincere best wishes....perhaps the transplant is the answer..I hope it is and that it is obtainable in the near future. Please convey to him my best wishes...

my husband passed away last saturday...a word to the wise, if you are looking for a lung transplant, get the evaluation while your still pretty healthy because once your sick they won't take you. Also, a big thing, wear a mask everywhere...pneumonia is what ultimately killed him. I miss him every day.

I'm sorry to hear the sad news. Please accept my condolences and best wishes.

My husband has had PF for 4 1/2 years and is at present awaiting a lung transplant. Every center is slightly different, but transplant is the only option for PF right now. Do you have insurance coverage?

my husband passed away aug 22. Duke would not accept him becuase he was too sick...he had pneumonia Good luck with your transplant..I hope he's been evaluated.

I don't have insurance , nor have I had any evaluation. I guess I was just wondering about possibilities "down the road:.....t'm really very sorry to hear the sad news...............why must there be so much illness in the world???.

Never wait for down the road if you have any ability to pursue diagnosis and treatment, you must ensure your own future if you want to live. I trusted uninterested dr's, getting incorrect diagnosis for two years while I got so bad that I couldn't breathe and by the time my husband took me to Natl Jewish Hosp. in Denver, CO, I was too frail to even go under minimally invasive testing. Told have incurable lung disease and at age 65 won't qualify for lung transplant, and am currently being treated for "quality of life" measures. I finally have insisted on being part of my own decision making in treatment and research of answers ... my shelf life may be shorter than most (no idea how long), but I won't sit by and let others decide how important my life and treatment is ... you have to push through the systems if you want to live. My prayers are with all those suffering from chronic and life threatening diseases, as for me each day is a gift, and I'm happy (despite meds side effects) to feel somewhat normal and be able to breathe and spend time with my family.