What is Pulmonary Fibrosis
Diffuse parenchymal lung disease (DPLD), also known as interstitial lung disease, refers to a group of lung diseases, affecting the alveolar epithelium, pulmonary capillary endothe...
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can emotions make this worse ?
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I haven't been checking this site recently for a couple of reasons. I feel so pooped out all the time. And then too, I have tried to escape the thought of being this disabled. I spend a lot of my time just laying around, yet I don't want anyone to know that it is this bad. I have been trying to get into a pulm. rehab program that while costly ( $25 a pop)and done twice a week may help - sure hope so. The funny thing is I feel so SOB nearly all the time, even with the oxygen yet my Feb check - CT scan and PFT's did not show that much progression.I'm starting to wonder if my emotions are making this worse? I saw someone comment on what a drag it is to be alone with this condition. My children are raising their own and have little time for me and my problem and while I understand the demands on them I don't think they get it (just how impaired I am and how sick I feel most of the time) It is such a big deal to shop while dealing with walkers, oxygen that I'm beat up when I get home and have to empty the car of my purchases. I wonder what I will do when I need to get clothes for an occasion. Right now I just grab the cheapies at the local Walmart and I get through.
....on a lighter note I'm going to my son's today to see my new grandaughter born this past Wed.. I need to do it early in the day as they are nearly 30 miles away, so I'll sign off. Please say a prayer for me. Thanks Posted on 04/26/09, 11:04 am |
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Hi dear.....I know from how Mike feels, that the "0fficial" progression of this disease is not the main factor ! He is terribly tired most days, and even his favourite hobbies cant tempt him enough to start doing them :( He is not ( and never has been) a lazy man....so I know for certain it is the effect of the PF. I really believe it is more insidious that is understood as yet.
I'm more concerned for you that your family seem to have little idea how ill you are.....and do feel they need a wake-up call ? You need help, you need company, they need to understand that. I dont know what to say dear.....yes, emotions always effect any ill health to the bad :( but please dont berate yourself that you are somehow not doing enough or fighting enough.....this illness is a horrid one. Hugs Kath 
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