Pulmonary Fibrosis Support Group

I have jsut been diagnosed with lung fibrosis. I made some research and found out that Serrapeptase (enzyme) seems to be the best one. have you ever heard about it? Nattokinase supports the fibrinolytic clearing system in the body which is responsible for healthy circulation, by helping to break down fibrin protein deposits in the bloodstream to promote and enhance healthy blood flow. But Serrapeptase digests dead tissue, blood clots, cysts, and arterial plaque. What do you think? thanks.

My husband is under the top lung specialty hospital in London.....when we went up last week the Professor actually gave prescribed NAC, although, due to British Pharmacy regulations it cant be on NHS....we have to buy it. It's not too expensive however and we have heard a lot in its favour.
He starts it next week as I've had to order over the internet. Will let you know !

May I ask if the supplement (NAC) to which you refer is N-Acetyl-Cysteine??

Yes, that's the one ! Brompton Hospital in London are starting most PF patients on it and hope to get it on prescription in the future.
We read about it on another PF help site and some who had been on it a while were pleased with the results....less coughing and less tightness in the chest.

Hi! I am new to this board, but I saw where a few are talking about Nattokinase and Serrapeptase and I thought I would put my "two cents" in here. I discovered "Neprinol" in 2004 after finding out I had PF and that it was fatal. I started taking the Neprinol and I have been taking it continuously since then. I had a chest xray done in 2006 for bronchitis and the doctor did tell me that my lungs looked "better" so I do think this enzyme product is working for me. I changed the company that I was purchasing the Neprinol from and they advised on their website that you should use another product with it called "SerraRX", which improves the functioning of both products when taken for PF, so I purchased this one too and have been taking it for about three months. I do believe my breathing is better since I found out I had this dreaded disease. I also have Fibromyalgia and the Neprinol helps that too because it breaks down fibrous tissues. Hope this helps!

I have been on Neprinol AFD for almost two months. I seem to have more energy but there has been no change in shortness of breath or weakness after exertion. I still need oxygen to recover my breathing. However yesterday I
played 3 short sets of doubles tennis by taking oxygen after a short set. Still hoping that Neprinol will help.

this drug NAC was recommended by the pulmongolist at the Mayo Clinic but husband hasn't seen any real improvement. Also taking Neprinol but again no improvement yet.

I asked the respirologist but he said something like " I was trained in medicine...so I have no real knowledge ( or view?/)...something like that.