What is Pulmonary Fibrosis
Diffuse parenchymal lung disease (DPLD), also known as interstitial lung disease, refers to a group of lung diseases, affecting the alveolar epithelium, pulmonary capillary endothe...
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Lung Transplant
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I was DX in may 2007,at that time the Doctor said the only care fo PF was a Transplant,but was unsure if I would Be a candidate because of age and having rheumatoid arthritis. I would like to hear if You have heard of this.
Posted on 02/11/09, 04:02 pm |
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my husband thought like you did UNTIL he couldn't breathe..he's been in ICU for 12 days trying to breathe and NOW he wants to be put on a transplant list...my husband has only been diagnosed for 6 months and he's in the hopsital already. 
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My husband has had PF for 4-1/2 yrs and is awaiting a transplant. True - that is the only option for now. Do not wait - apply for one while you are reasonably healthy. NO doctor has this disease under control no matter what they say. Duke Univ seems to be the center with the least restrictions.
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Duke was wonderful but sometimes there is rapid decline and that's what my husband had, went from being fine, no oxygen (actually had just gotten it) got pneumoia and was never able to breathe on his own again. Duke won't accept you if your on 100% oxygen becuase you do not do well with a transplant, which I understand.
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