Pulmonary Fibrosis Support Group

How did you know he was having blood clots, any visible signs? I am clueless, but the other day had a huge knot on my let, which I assumed I had hit myself on something ... the meds make me clumsy so that's not unusual, but then it finally was gone the next morning, but a there was a huge bruise where the knot had been. I am so sorry for you and your family, this must be even more difficult for you all, especially with children to care for. My prayers are with you all. Your husband must be relatively young, so hang in there.

yes he is only 39 his breathing got worse never seen him struggle that bad,he has had a scan on his chest and they found the clots forming on his lungs there is quite a few all they have said to me is he will either pass them or not, they fall of and clog the heart,i dont like upsetting anyone with this illness but this is one part of it ive never heard of

I found some information on this website .http://www.nhlbi.nih.gov/health/dci/Diseases/pe/pe_what.html I know this is something they look for when you are in the ER with a lung problem. It is scary, I feel bad for you and your husband, he's so young to suffer like that. Sometimes all we can do is pray. I'm going to start doing a prayer for the whole support group ... sometimes when I can't get the questions I have about my lung illness, which is often, I feel lost and without any power in the situation. When you have a lung illness you need a good pulmonologist, a good general doctor, and an advocate doctor that will cooperate together, and that might be impossible to find. I had to go to Nat'l Jewish Hospital in Denver, Colorado to even find out what my illness was, and luckily have a "asthma doctor" locally that confered with the Denver doctor, and acts as my advocate, but still looking for the other two doctors I need to get services I need. A good local pulmonologist seems to be the most difficult for me to find. Know my thoughts are with you.

thank you going to have a look xxx like you i feel for everyone and my thoughts are with you all,will let you know after i have looked it up

well i went to your website and i must say it was usefull,the signs and symptoms are so right,well im gonna have to hang in there carry on smiling and ill get there,just another thing to deal with now,this illness is so wrong i have no help im in england and the care is not as good as yours,i cope alone cause the health systom dont care

I know it's hard to deal with, but thank goodness he has you to take care of him. I am 65, and I am still able to get to a doctor or let my husband know if I need to go to a hospital, but it's one day at a time. I've been told I have an incurable lung illness, but am being treated with some medications that allow me me breathe a little better, but don't know what comes next either. I have done some research on the internet on lung illness, as I feel understanding it helps me to cope with the syptoms and whatever difficulties might be ahead. Every day is a gift, and like you I intend to smile and try to find the good in it, or on lesser days - try to get through it. Hang in there.