What is Pulmonary Fibrosis

Diffuse parenchymal lung disease (DPLD), also known as interstitial lung disease, refers to a group of lung diseases, affecting the alveolar epithelium, pulmonary capillary endothe...

Join Now

Free, anonymous support from people just like you.

We're on Facebook!
Check out our page!
DS Store is Open
DS t-shirts and more
Advertisement
Advice:
Living with Pulmonary Fibrois
Watch this 
View More Posts Ignore
I just signed my dad up for this site as a means for support and "a shoulder to cry on"; however, because of his current condition I'm not sure how often he will be able to log in. He is currently in the hospital at the moment.

My dad was recently diagnosed with Pulmonary Fibrois on August 5 of this year. Things have been pretty rough for him since then. He came home from the hospital after his biopsy surgery on August 10, then on August 30 he started having severe trouble breathing and ended up back in the hospital when he is currently at. He's been in the hospital approximately 40 days since August 5. I can tell every time I visit him that he is not sure what to expect. Some times he seems to being doing ok, but then other times he is down and highly depressed. My mom and I don't know how to help him as we can't even imagine what and how e is feeling. He mentioned that he would like to find other individuals who are living with this disease and hopefully be able to learn what to expect and how to live as normal a life as possible.

I would appreciate any feedback anyone can give as it breaks my heart to see my dad so sad. I just don't know how to help him.

Thanks in advance.
Trish (Txsunshine)
Txsunshine@mesh.net
Posted on 09/28/08, 07:09 pm
11 Replies | Most Recent Add Your Advice
Reminder: This is a support group for Pulmonary Fibrosis. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Advice:
Email me when others reply to this topic help
View More Posts Ignore
Reply #11 - 09/11/09  12:12am
" I'm so sorry to hear about your Dad. We are in Texas, too; my husband has pf and we are awaiting a lung transplant. That is the only real hope, and I suggest that he make application as soon as he can. Texas has 4 great transplant centers: Baylor Dallas, UT Southwestern Dallas, UT Medical Ctr San Antonio, and Methodist Hospital Houston. What have you got to lose? "

First | Previous | Page: 1 2 | Next | Most Recent Add Your Advice
Advertisement

Advertisement
Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Portions of support group and treatment information provided by Wikipedia under the GNU FDL license
Copyright 2006-2009, DailyStrength, Inc. All rights reserved.
Terms of Service | Privacy Policy | Report Abuse | HSW International | HSW China | HSW Brazil