What is Pulmonary Fibrosis
Diffuse parenchymal lung disease (DPLD), also known as interstitial lung disease, refers to a group of lung diseases, affecting the alveolar epithelium, pulmonary capillary endothe...
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I want to understand on how you feel
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I ask my husband how are you doing today. He gets upset and says nothing to say, about the same. I want to have a conversation about this illness. I want to know his feelings. Been told he was in "end stages of dying". Acceptence. I just need someone going through this to talk to.
Posted on 02/03/07, 10:02 am |
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Im not sure how long it has been for your husband. But the truth is he may not know how he fells about the poss. of death nor be able to put what he fells into words. 
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I am not in the end stages but I can tell you that my husband is always asking me how I feel, I feel bad or the same but if I tell him this he wants to fix it and there is nothing he can do. He cannot breathe for me our make my lungs work, it makes him feel helpless so I try to just tell him I am doing okay that way he doesn't feel hopeless. I love him dearly and hate to see him in pain, after all which one of us would not want to change places with the one we love that is in pain or suffering.
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I don't think it is a good idea to ask your husband " how are you doing " I think I understand how you feel, and I know how he feels. Would be glad to talk to you over the phone or via this service.
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When My Husband ask Me how I'm feeling,I reply okay today.There's not anything that He can do for Me.But there are times that He must know and gives Me a big hug without any words.
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I'm not married but, my brother and sister are constantly worried for my welfare. They constantly ask me how am I doing? I don't know what to say to them other than I'm okay at the moment even when I'm out of breath. I'm not on oxygen 24/7 yet. So, they think I should get on oxygen more often. I don't want to become more dependent on oxygen than I am already. I'm on oxygen now about 20/7. I wake up in the morning and say what a beautiful morning this is. I am grateful I don't know what stage I am in but, I was DXed with IPF with an open lung biopsy in May 2008. The majority of my right lung and about 1/2 of my left lung are affected with the disease. I wish you a Grand Week, Be Well. Tom
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