Pulmonary Embolism Support Group

i'm 34,married, relatively healthy and had been taking a high dose estrogen bc pill for a serious bleeding condition for many years with no problems. They ran out of my reg pill and switched me to a cheaper diff estrogen version and i had all sorts of probs with it the last two months.Then out of no where two weeks ago i had excruciating pain in my chest and back for two days. (i'm pain tolerant, had natural childbirth with both my children and this was scream out loud sort of pain). at the ER after an EKG, CT scan, xrays and all that, they found multiple pulmonary embolisms in my left lung, and that some of my lung tissue showed up dark on the scan from lack of oxygen.
Since i've been home, i've done arixtra injectables for days, and then oral warfarin with blood tests every three days. The pain pills do not help the pain at all which hasn't much improved. My INR tests have been high every time, in the 4 range. I was told by a medical professional friend that warfarin can have side effects like lots of nausea, headaches ect. I have extreme nausea, throw up everything i eat, lost 16 lbs in two weeks, killer headaches and can't sleep. I feel so fatigued and anxious all the time. is this normal? do people have less side effects on lovenox? Is this common on warfarin? How long have other people experienced pain in their chest? They say i can be on warfarin for 3-6 months.

My other issue is bc. i can never take estrogen again, so i'm trying a progesterone only restart the last ten days to see if my cycle returns to normal. (doubtful) But i've tried both kinds of IUD's previously, never again! condoms don't help my bleeding condition, and i've heard nightmares about depro provera. I don't want the hysterectomy they suggested (especially not on blood thinners!) Any ideas? what do you do?
thank you for any ideas/support. I could really use it, i feel so lost.
Posted on 11/01/09, 08:11 pm