What is Pulmonary Embolism
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation an...
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Hormone management for PCOS after having a PE?
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Hi!
I have polycystic ovarian syndrome (PCOS), and had a PE about 6 weeks ago. I was on Seasonale (wasn't the cause, but probably didn't help!), and of course now I'm off of that. I am wondering how I am going to be able to stabilize my hormones now. With PCOS, my testosterone levels go very high, and my progesterone levels drop off the planet. Since it seems that it's the estrogen component of hormone medications that causes issues, I'm wondering if I'd be able to take an anti-androgen like Spironolactone (aldactone), which I've taken before with success, mixed with some sort of progesterone only pill, like a mini pill or perhaps Depo Provera. Does anyone have any experience with this? I will probably see an endocrinologist before going on ANYTHING, and it won't be real soon (I'm happy enough to be freakin' alive after a PE, and don't need to complicate things while I'm recovering), but it's something I need to look at in the future... Posted on 10/11/09, 01:10 am |
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Hi I have PCOS too and had a PE and was hospitalized in Janary. Just be careful and lucky to be alive as well 
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Hi Marit,
I have endometriosis which gets worse with every cycle. They think the Dianette I was on caused my clots. While I was on the warfarin it was fine, I switched to the mini-pill (progesterone-only), which is considered to be less risky for clots, but it didn't really matter while I was anticoagulated. Now, I've been off the warfarin for a month and I've been told I should stop the mini-pill because new research suggests that though less risky than the combined pill, the progesterone-only pill is still somewhat riskier than no pill. Not good. So I can have a coil fitted as apparently the progesterone does not enter the blood stream, but then I would still have normal cycles and my endo would get worse and more painful. So far, I haven't worked out an easy solution. I have an appointment in a few weeks with my haematologist and will ask him whether I have any options? I'm thinking low-dose warfarin or something similar? Definitely open to suggestions...
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Good morning,
I am sorry to here of the trouble you are having, and I can say I know how you feel I had my bloodclots found this past April and I am glad to be alive. But I am also sick of all the troubles that come with them. I am sorry I got off track, I would stay away from the DEPO at all costs. The one time I used it it was the worst three monthes of my life. mnmmom
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I had my PE in Feb 08 and still occasionally pop on to DS.
I have PCOS and was on Dianette OCP and aldactone 100mg for years. I stopped the pill straight away and saw my endocrinologist after a few weeks. He recommended NO hormone type contraception of any sort, but to continue the aldactone at a reduce dose (50mg) to manage my PCOS symptoms (mosly facial hair). The reason for the reduced dose is that taking aldactone on its own can cause irregular periods (more frequent I think?). That's why it is normally taken in conjunction with the pill whether the contraception is neeed or not. So I have been on just the aldactone for over a year now and haven't had any problems. You just have to keep a record of everything for the Endo. I do think that my symptoms are worsening gradually, but it is very subjective!! Am going back to the Endo in a few weeks so will raise this with him. Good luck!!
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thanks you guys! I really appreciate the input and support...
Jenni I was on aldactone in the past and it was helpful for my 'shedding' hair, so hopefully if I go on it again it might stem this weird warfarin falling-out. lol. As for irregular periods, well, I generally don't have any at all, however since stopping the pill this time, what do you know I've had them like clockwork. Go figure. One thing I've noticed is that my INR has been 1.7 just before both of my last 2 periods. Then we bump up the dose and it usually goes to 2.4. Then it happens again. Argh. I don't know if it's related or if the dose is just bouncing around because we haven't hit the right level yet. *sigh*
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