What is Pulmonary Embolism
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation an...
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Hi,
I was diagnosed with P.E on the 2nd June while away on a sailing trip with my husband in France.We intended to spend the year sailing to the Med. After spending two weeks in hospital I was flown back to the UK.My GP put me on Clexane injections initially then was going to introduce Warfarin after a couple of weeks,as the drug I was on in France is not available in the uk.After 10 days of feeling ok but having problems with SOB when climbing steps.I developed the pain again but not as bad and only casually mentioned it to the district nurse who was about to give me my injection.She contacted the Dr on duty,who asked to see me he suggested I go straight to hospital for another scan.Once at hospital they started me on Warfarin and would not scan as they said it was possible that the blood clot had reappeared or their were traces of the original blood clot. Either way the only treatment was Warfarin.After 4 days I was allowed home as my INR was 2.9. Found this site great,nice to hear other peoples experiences,I dont feel so alone. I'm keen to go back to sailing as we have left our boat in France.I realise I have to be well first and after reading some of the stories I think it may be sometime.I was told that I could buy a Cogucheck machine and do my own INR and email the nurse for details of my dose.Does anyone out there do this & if so where can I get one from?Any info will be great. Posted on 07/02/09, 05:07 pm |
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Coagucheck XR -made by Roche , distributed by QAS -they try and help you work with insurance or sell you the machine. Supplies are not cheap either -my insurance company pays for mine. I have been using it for about a year-I have a new Doc since Oct 2008 and I don't have to call him unless my level is 3.5. Blessings, Teri 
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Travelnut and Markarina both contributed to my post at http://www.dailystrength.org/c/Pul... .
Today I went to the clinic for the last time. I tested INR 3.0 this morning with the meter, and they tested 3.0 with their klunky painful vein-draw method. Earlier I had my drs office do a similar double test. The drs lab got 2.4 and I got 2.7, which is well within normal variance. My Dr, rather than the clinic, will now work with my dosing but I am already familiar with using diet and activity to keep INR stable. Like flipper suggested I was recommended the Coaguchek but I ran into a lot of insurance difficulties. By the time I started the whole process over I ended up with a Hemosense INRatio, which is perhaps a second-best to the Coaguchek but seems to be working accurately just like in various trials. Both are among the USA FDA approved meters. It appears I will be on the warfarin for life, so the meter has plenty of time to pay for itself. For the first time in over a year, my employer's company calendar does not show any of my annoying planned absences for clinic visits. It's not like being cured but the regained independence (apropos for this USA holiday) is the next best thing.
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Hi Mandy,
you've probably read the post that more2be gave the link to, so I won't repeat that info, but I spent 11 weeks on the west coast of Canada and was able to email my test results and dosage results without any problem, but it all depends on the individual clinic. When I'm in the UK I just call in the results. if you need any info drop me a PM and I'll try to help, may be a delay in replying as I am in the US at the moment. Mark
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