What is Pulmonary Embolism
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation an...
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Heart advice appreciated
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Thanks so much for the advice I got regarding cardiac issues after PE. I can't tell you all how helpful you are. Just discussing this with people that have been through it is a relief. Hearing that the situation with my heart is not usual also reduces my stress. I've had an arryhthmia called A-fib for many years. It is now under control after a cardiac ablation and medication, I dont need any other heart issues. Your kindness and willingness to share your experience really helps. Thank you.
Unfortunately, I have been through a lot of surgeries over the last 4 years. But recovering from the PE is by far the most difficult. This recovery is so frustrating. Trying to do physical therapy for my hip (total replacement) while I'm still sob is sooo hard. They aren't even pushing me but even the isometric exercises wear me out. My husband has been wonderful, but he just doesn't understand the level of fatigue involved. I literally feel like I'm 80 at 50. It must be totally irritating for those of you that are so young. I have to say that just looking at ShilosMommy's picture puts a smile on my face. What a cutie!! I look forward to sharing your ups and downs with you and hope my whining doesn't get too obnoxious. (Just let me know if it does) Mary Lou Posted on 06/30/09, 09:06 pm |
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Hey, that's what we're here for, the whining to each other, along with sharing the good stuff too. This is a great place to be because everyone knows exactly how hard it is. It's funny you say you feel 80, that's exactly what I said every day, and I was only 32! Things do get better, and while in my case at least they haven't gotten totally back to normal yet either, I'm still planning on continued improvement.
It is very hard for family members to understand, even when they're very good and supportive, they just can't feel what we feel, so it's hard for them. I used to remind myself that really this was something that happened to our whole family, not just me, because I know they all suffered too, just in different ways than I did. Thank you for the comment about my son! And even better to know that he can put a smile on your face. I know from experience how much just feeling that smile helps in the beginning! Be patient with yourself and your family. It's hard, but things will get better, really. And just let us know anytime if we can help in any way. Sarah 
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Ditto what Silos mommy said -all of it. Take one day at a time. It has taken me nearly 2 years to get back to a semi-normal self-just recently. You are a survivor -listen to your body and take it slow. I wonder if you could ask that you be tested to see if you need some or even just given some Oxygen to use during the PT if that is when you are getting SOB to help you . Yeah, it never hurts to ask! Blessings, Teri
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