What is Pulmonary Embolism
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation an...
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Nervous all the time
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Hi there! I suffered my PE on Aug. 1st. A couple of weeks before I think I started showing symptoms of DVT in my right leg (it got very sore) but never really knew what it was because I also have varicous veins on that leg as well so I thought it was just that . Then my shoulder started to really hurt then it went down my back and continued with a stabbing pain when I took a deep breath. I am (was) a swimmer and I figured that maybe I pulled my trapezoid so I went to a couple of physio sessions!!!! Well it didn't help and the stabbing paid got so bad that it just hurt to breath and my pulse was high and I couldn't find any comfortable position, so my husband took me to the ER. After bloodwork and an X-Ray they said it was either Pneumonia or PE. So they gave me an ejection of Fragmin and told me to come back in the morning for a Nuclear Scan which confirmed my worst fear.
I am taking coumadin now and my last IRM was 1.9 which the Doctor was happy with. It took a bit of adjustment of the medication, but its fine for now. Until the next blood test!!!! I am not a smoker or drinker and I am physically fit and I am not on the pill. I still can't believe that this has happened to me and I say to myself what did I do wrong? I worry all the time when I feel a bit of pain in my back or shoulder that wasn't there the day before or when my leg is sore around where my varicous veins are. The Doctor said that those veins are superficial and have nothing to do with it. I think I am driving my family crazy cause this is all I think of. My husband is very supportive, but I think he is getting tired of my worrying and wonders when the old me will come back. I can't even concentrate on things like I used to, I was always so sharp and quick. I feel so out of sorts:o( Is it normal to have all these feelings and to be so nervous? Posted on 09/03/09, 12:09 pm |
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Yes! I had a PE on 7th July, Im 27, not on the pill, not a smoer, no DVT, It just happened from no-where. I had complications with mune, a collapsed lung and fluid on my lung, 2 weeks after the 1st PE, i got chest pains again on the other side, My INR was found to be sub-theraputic, and I was treated for another clot.
I continually feel on edge all the time, Im scared to death of coming off warfarin, and the icing of the cake was my partner of 11 years, daddy to our 2 kids left me the day i came out of hospital the second time. I am so paranoi somehting might happen when i am at home with my kids, I analyze every pain, and sometimes I feel scared to go to sleep..I think thats from when I first went in the hospital, I had been really ill a week, I was in agony, counldnt breathe and i couldnt even brush my own hair in the end, I had visited my gP, who mis diagnosed me as a pulled muscle and anxious! All I can say it does get easier, little at a time, I had to look at the, 'I almost died I am lucky to be alive', in truth no-one knows what is around the corner, i feel a day spent worrying is a day of my life wasted. Afterall worrying will not prevent it happening again, if anything the more stressed and run down you are, the greater impact on your health. I know its easier said than done, and I feel for you. Talking about it helps, make sure you get the support you need. Hugs Rachael xx 
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Oops sorry so many typo's, I wrote it quickly whilst seeing to the kids, apologies. x
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PE is potentially fatal, but responds quickly to treatment. Getting past the first hour in the hospital brings a 95% rate of survival, with the chances of recovery improving further thereafter.
The problem is that the fear far outlasts the danger. Everyone's case is different Generally whey you have a record of progress, you feel more secure. There is a lot ahead, staring with staying in your warfarin regimen. Additional doppler and CT scans, if you can get them authorized, will allow seeing your progress before leaving warfarin. It is also prudent to test for certain acquired or hereditary clot conditions http://www.fvleiden.org/recently-d... . Some tests, such as FVL and 20210, can be run without leaving warfarin. You are not alone being an active person hit with VTE, but that is another long story.
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TOTALLY normal, and I'm so appreciative of all the people on the board here for reassuring me about this after I had my incident in late June. It's only now that I'm starting to stop second-guessing myself all the time!
You didn't do anything wrong, probably--be sure to follow up with your doctor about those genetic conditions and other things to see if you can find out what the origin was, but you may never know. Hang in there!
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Thanks for all the support and advice, it really makes me feel that I am not alone with this. The Doctors did say that I may never know the reason why this happened. I assumed that it was DVT because I remember my leg hurting a lot about 1-2 weeks before, but maybe it was nothing. I will ask my Doctor about the other tests, and defiantly another doppler. Its great to have a support group like this because unless it has happened to you, you really can't understand what the person is going through. I know my family means well by saying "there is nothing to worry about, everything is ok now".
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Hi there,
I am 37 and was in great shape when I had my PE back in July. I actually had another one a few months earlier that got diagnosed as "pleurisy." I have a minor genetic component (heterozygous factor v leiden), but no other risk factors. It just happens. BUT to add to all the good advice here, I will tell you that a very significant percentage of people with PE have major problems with anxiety and panic attacks. You are definitely not alone in that regard. It may be that we are naturally worried about pains, since such a serious thing happened to us out of the blue, or it may be physiological. You should consider getting treated for anxiety. There are lots of options and I am sure you can find one that works for you. Even having a couple of something like xanax or a benzodiazapine (like valium or lorazepam) on hand can be great. Use one when things get really bad, but quite often just knowing you have it in your pocket can settle you down. Just don't get addicted to those suckers. Anyway, you are not alone. It is very natural to feel that way after what has happened.
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Hello I had a PE this week and left the hospital on Thursday. I am still short of breath and I am still very scared. Every little pain I feel I am freacking out. I know that it takes a while to get back to normal but this thing really scared me. I really enjoy reading the post and learning more about PE. Good luck to everyone
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I think it's perfectly normal to be somewhat nervous, and suspicious of things like back pain twinges, especially if you've had more than one PE.
Like yourself, I was (and still am) relatively fit (most of the time), but I still get a little freak out if I get any back pain. It was the back pain that was the real initial symptom of both of my PEs. However, after time, I've learnt to live with this 'healthy suspicion' - most of the time, if I have back pain, it's because I'm slouching at my desk again ! Don't worry, a little paranoia is probably a good thing! Better to be on the lookout for problems.
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Yeah, you are not alone in being nervous and this is a great support group. The back pain was my predominant symptom too, so I analize all pains in that area. I saw my doctor today and I told him about all my aches and pains, and he did say one thing that made sense. If you are a very physically fit and active person sometimes you will get more aches and pains because your muscles are so used to being used all the time and then all of a sudden they are not. For me since I have had my PE, I have not done any exercising at all! I actually just started to swim a bit (very slow) and go for walks last week. I find just this small bit of being active is helping my nerves and my mind get better.
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A bit more reassurance hopefuly because I so remember the awful feeling of anxiety I had at the time (over 2 years ago now). Truly I never thought that I'd live a normal life - I went into shops and had to come straight out - I was agitated, nervy and weepy for sometime after. =Have read somewhere that it is natural response - senses heightened as your body looks to protect itself so please don't worry - time is a healer in all of this - if you're worried about any physical symptoms though go back - and back and back again. Be well soon x
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