What is Psuedotumor-Cerebri
Idiopathic intracranial hypertension (IIH), sometimes called benign intracranial hypertension (BIH) or pseudotumor cerebri (PTC) is a neurological disorder that is characterized by...
Join Now
|
Guess it's my turn...
|
Watch this |
| View More Posts Ignore |
Came to Ohio to see Dr. Katz for my Friday appointment. As we inched closer to Columbus, however, I began having head pain and pressure. When we arrived at my mothers I took medication and felt a litle better, but, then took the children trick or treating. Needless to say, by the time our outing was over I was in excruciating pain. My husband took me to the hospital...another LP was done (just had one done 3 weeks ago), and my opening pressure was 38. I saw Dr. Katz the next morning and he decided that it was definitely time for a shunt.
I have now been admitted to OSU hospital and am scheduled to have a shunt placement surgery sometime on Monday. This is all happening so quickly, it is truly a blur. My 18 year old son is still in Rochester and is having a difficult time knowing that he can't be here. The whole family is a bit nervous about the procedure...and of course, you all know I'm terrified. But, as you know, I can't endure the agony of the disease without treatment either. So, now it's my turn....hoping it will turn out well. MM3 Posted on 10/31/09, 09:10 pm |
| 36 Replies | Most Recent | Add Your Reply |
| View More Posts Ignore |
I hope that everything works out for you and you find relief with the shunt! I am scheduled to see Dr. Katz on Dec. 7, so I'm glad to see he is taking care of you! 
|
|
|
|
||
| View More Posts Ignore |
Hi MM3,
I am so happy for you! I am sure that the shunt will give you relief...do you know if this will be an LP or VP shunt. You have suffered so much ... pull strength from the many success stories that you have read about here. I will be thinking of you and praying for you on Monday...lots of positive vibes headed your way !! Judie
|
|
|
|
||
| View More Posts Ignore |
|
|
|
|
||
| View More Posts Ignore |
MM3,
I'm glad you found a doctor that agrees the shunt is the right way to go. I'll never forget the desperation I felt when that first NS I saw last May said no way would he operate and put in a shunt since I was high risk. Then the next week, my neurologist set me up with my new NS and he said he had no doubts to do it. I don't know where I would be now if I was still having the excruciating headache daily 24-7 that I was having before my shunt. I know you will do fine and I'm sending up prayers for you. Look forward to hearing how much better you will feel after your shunt placement. Hugz, Liz
|
|
|
|
||
| View More Posts Ignore |
MM3,
I know deep in my heart that everything will turn out excellent, and just think how you will feel better and get your life back! Of course you are scared, that is natural, no one is happy going to surgery, but this is a surgery that is done every day and very common. From what I've read the VP shunt is easier to heal from than the LP shunt that I have, and mine wasn't that bad at all, nothing like other major surgeries I've had. Just take your pain meds (don't try and "tough it out" and also make sure you give yourself time to heal and recover and not have any setbacks, you will be super Mom again in no time) and rest. All of the Dr's/Nurses/OR techs have come together in this specific moment for you to have a successfull surgery. Just think of all the love from your friend's/family/angel's surrounding you, holding you, every step of the way. Remember not only is God in you but you are in God. Trust in the Lord that now is the time for you to get better, you as always are in my prayers and healing loving hugs, Jazzy
|
|
|
|
||
| View More Posts Ignore |
It sounds like you're in the best of hands! I'll be thinking of you tomorrow & praying for you & your family.
|
|
|
|
||
| View More Posts Ignore |
Good luck, your in our thoughts and prayers.
|
|
|
|
||
| View More Posts Ignore |
Good luck MM3!! You will be in my thoughts and prayers tomorrow. I hope this finally gives you some relief!
Nee
|
|
|
|
||
| View More Posts Ignore |
Update: Met with Dr. McGregor the NS, he is also WONDERFUL! He spent a half an hour speaking to me about the pros and cons of the surgery, pros and cons of both LP and VP shunts, adjustable valves and the rate of PTC incidence int the midwest states...(much higher although they don't know why), average healing time, etc. He was very informative and thorough.
I am having the VP shunt surgery w/adjustable valve done TUESDAY morning. He moved it from Monday due to scheduling conflicts. I will update you all on how it goes, but I am feeling confident. MM3
|
|
|
|
||
| View More Posts Ignore |
I'm glad you're feeling better about it. I have to say, I've lived in Columbus forever and I used to always prefer Riverside (that is where I was born afterall) but after all this mess with my health, I have found that OSU really is the best hospital in the city. They are better informed and have better care. I haven't met either of these doctors yet, but I know that you are in good hands because when I was diagnosed with PTC last week, my grandmother got on the phone with her NS (the head of neurosurgery at OSU) and he said that he sends all of his PTC patients to Dr. McGregor and it is through Dr. McGregor that I got Dr. Katz's name. Let me know if there is anything I can do for you and keep us updated.
|
|
|
|
||
| First | Previous | Page: 1 2 3 4 | Next | Most Recent | Add Your Reply |
