Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
So......you have all seen me complain about my acidosis and what a pain in the butt it is.
I am too curious I suppose but with this , that's a good thing !
My Chloride kept rising, my Potassium wouldn't stay above 3.7 even taking 30 Meq's of Potassium Chloride per day ...and I am only on 500mg of Diamox and 10mg of Lasix !!!! That's almost nothing.
My co2 would not go above 18 anymore.
I found a paper that stated that you are supposed to give Potassium Citrate or Potassium Bicarbonate for Hypokalemia when you are in a state of metabolic acidosis.
I showed this to one of my docs and he put me on 40meq's of Potassium Citrate several days ago.
I saw my Neuro op today and I asked him why I had to deal with this if I could have just had my potassium changed and it would have alleviated the acidosis. He admitted, I should have been on the Citrate form. I am happy that I have a doc who doesn't mind showing a little humility !
PROXIMAL RENAL TUBULAR ACIDOSIS is what I had.
Today .....my co2 is up to 22 , my chloride is going back down and my Potassium is 3.9.
Unreal huh ????
I can breathe again !!!!!!!!!!!!!!!!!!
It is amazing that I am seeing three doctors and none of them put that together. I DID.
I have been on the Diamox for two years, My body is starting to tire of it . That's why my bloods started going wonky. My kidneys are fine...jthe renal tube just isn't keeping up.
I hope this helps someone dealing with mild acidosis ! Watch your Chloride and Co2 levels...and Potassium. Ask for copies of your medrecs ! Everytime I get my blood drawn, I sign a release to have them fax it directly to me , I then fax it to the doc ! That way I can look at it and keep a copy.
I am too curious I suppose but with this , that's a good thing !
My Chloride kept rising, my Potassium wouldn't stay above 3.7 even taking 30 Meq's of Potassium Chloride per day ...and I am only on 500mg of Diamox and 10mg of Lasix !!!! That's almost nothing.
My co2 would not go above 18 anymore.
I found a paper that stated that you are supposed to give Potassium Citrate or Potassium Bicarbonate for Hypokalemia when you are in a state of metabolic acidosis.
I showed this to one of my docs and he put me on 40meq's of Potassium Citrate several days ago.
I saw my Neuro op today and I asked him why I had to deal with this if I could have just had my potassium changed and it would have alleviated the acidosis. He admitted, I should have been on the Citrate form. I am happy that I have a doc who doesn't mind showing a little humility !
PROXIMAL RENAL TUBULAR ACIDOSIS is what I had.
Today .....my co2 is up to 22 , my chloride is going back down and my Potassium is 3.9.
Unreal huh ????
I can breathe again !!!!!!!!!!!!!!!!!!
It is amazing that I am seeing three doctors and none of them put that together. I DID.
I have been on the Diamox for two years, My body is starting to tire of it . That's why my bloods started going wonky. My kidneys are fine...jthe renal tube just isn't keeping up.
I hope this helps someone dealing with mild acidosis ! Watch your Chloride and Co2 levels...and Potassium. Ask for copies of your medrecs ! Everytime I get my blood drawn, I sign a release to have them fax it directly to me , I then fax it to the doc ! That way I can look at it and keep a copy.
I am so happy that you figured it out! The saying is true we are our own best advocates for sure...
Ash
I'll need to find a doctor that will care to work with me, if there's a possibility of alleviating my symptoms.
KrYs
Thanks!
Beth
Thanks for continuing to ask questions and re-post the answers you are given for us to work with! Very much appreciated!
-beth
Please don't worry yourselves ....I never had any horrible problems or life threatening - yet , thank goodness ! Seasprite did. So, we just need to watch it ..be proactive and get those results for ourselves and ask questions !!! I think by now I have some kind of "honorary" medical degree !!!!! lol
I'm glad you finally figured it out now I can bring this up with my NO at my next appt. So far my CO2 is still holding on at 18 but my chloride is in the normal range now. I will let you know if it works for me.
Kay
I'm glad the potassium is working for you! I'm surprised that with the amount of problems you were having your doctor didn't send you to a nephrologist. My neurologist sent me to one because of the bad incident I had about a year or so ago. Kidney doc says acidosis problems are often kidney problems. The kidneys keep that balance. My nephrologist is the one that manages my diamox and potassium dosages, etc. I have renal tubular acidosis, too. My kidney doc says that's a common with Diamox or Topamax, and it's also why I'm getting kidney stones. Lucky us.
Have they put you on an acidosis diet? Google brings up tons of food lists.