What is Prolactinoma
A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused...
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Off medication - any experiences?
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Hello
I have now been on Norprolac - Quinagolide for half a year. Before I was on Dostinex. My endo now wants me to stop, because Norprolac doesn't work. My levels are around 1000. (on 150 mg Norprolac around 750 and on Dostinex around 500). My prolactinoma is around 5 mm What can I expect? I think that I get a lot symptoms on medication? But will it be worse without? I have been off meds before, but my levels didn't raise untill more than 1500. My endo says, that I shall react if I get severe headache and vision disturbances, and he says that I shall have a bone scan in half a year. My periods has stopped. I'm trying hypericum to cope with the fatigue and moodines that follows elevated prolactin. Any of you have any experiences? Is it probable to get estrogen in a natural way? Lots of greetings Gitte Posted on 10/28/09, 11:10 am |
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I have taken only parlodel /bromocriptin since pituitary surgery in 1978....
About a year ago, I was given the green light to stop taking parlodel, even though my tumor returned... it depends on your body, tumor and endocrinologist on what you will be prescribed and dosage. I have to get dexa scans every three years now..be on the look out for bone issues such as AVN.. Avascular Necrosis; be sure your endo discusses possible one degeneration with you. It is best to get yourself and eye specialists that specializes in Endocrinology... They do exist.. my doctor is in Columbia SC. You should also find a specialist who deals with fibromyalgia. Take care 
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hello
Thanks for your reply. Do you think that fibromyaligia is associated with prolactinoma? I also get dexa scan every year, and eye exams every second year. What about your well-being, is it better/worse without meds? Take care! Gitte
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