What is Prolactinoma
A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused...
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Weight Loss and Bone Mass with Cabergoline
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Hi everyone,
I am back to just vent! haha Yesterday I went to my PCP and she informed me about my very low Vitamin D levels (low is 32, mine was 8). So now I am taking vitamin supplements. I know that Hyperprolactinemia can affect bone mass, not sure about Vitamin D, but I urge everyone to have like a bone scan or some type of test if you had elevated prolactin levels for a long time. Just so you know what you are dealing with. Okay, now is the time for me to vent. At my last visit my PCP didn't believe that the hyperprolactinemia was controlling my weight and that the Cabergoline was influencing my weight loss. She gave me a demand of "I want you to lose 6 lbs in 6 weeks by our next appointment" So I said "Sure". Well I was nervous going into my appointment yesterday because I don't own a scale and I thought that maybe I've gained weight. It turns out I lost 5 more lbs. She asks, "So what are you doing to lose weight" and I said "Nothing, I'm too tired to do anything" and she probed more about how this weight loss was done (also, I stopped regularly taking high blood pressure medicine because the Cabergoline is now really working and my blood pressure is transitioning back to normal). So I pulled out two journal articles on weight loss on Cabergoline and bone and fat in hyperprolactinemia patients- she looked at these items as if they were messages from the devil. Yesterday was another rough visit where she continued to tell me my recent energy loss is related to my obesity and I need to lose weight- What my 10lb weight loss in 3 months isn't cutting it?!?!?! She blames everything on my weight, like if a tsunami hit, my large mass size is what drew the tsunami on shore. Later on she told me "You should worry about cutting out juices from your diet than reading those journal articles" I am now looking for a new PCP. I was hoping she would read the articles instead of fighting with me about my weight loss. Those articles will help save someone from the obesity of this disease only if she informs herself. Drs need to stop yelling at their patients about obesity when they don't help them try to find the cause and when the cause is found, they still get mad at them for losing weight yet still being heavy. I bet you if I had loss the weight from her husband's medical weight loss problem at the same rate I am doing now, she wouldn't be yelling at me. I don't get her. The next person I have to deal with is my Endocrinologist at first he didn't believe that the medicine will help in weight loss either. But I am prime example it does.... Before I was gaining 2-4 lbs each month. Now I am not.... that tells you a lot. I am going to talk to my friends who are med students/doctors and see if there is something that we can do as patients to inform all of the doctors across the US at least about our experiences with hyperprolactinemia and pituitary adenomas. Posted on 06/27/09, 09:06 am |
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I've been taking cabergoline for a year, eat nothing processed/ right sizes/super healthy, and exercise like crazy and I am not able to loose weight. I've always been thin and low body fat. Now I'm 15 lbs heavier than when I had kids. It's like my body is off.
I haven't really found a DR that even believes weight gain is caused by prolactinoma. 
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Weight gain is caused by it...I lose 20 pounds right after I started Dostinex....like 9 years ago...wish I could lose morw....
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Yes,
For many weight gain is caused by hyperprolactinemia or having a mass on the pituitary or an empty sella. I am hoping that I may be the odd one out on this group that manages to lose all the weight that was gained due to the high levels of prolactin (I am hoping this because I don't have any mass that they can detect anywhere, that way other hormones may not be affected in the weight loss effort due to a mass). There are many on here who report weight loss once on medicine, and even medical journal articles state this phenomenon, I just don't understand why the doctors, especially mine can't see the weight gain and weight loss. Hopefully my endo will see this as a testament to the efficacy of the drug. That way if he has someone else that rolls in with my problem or something similar, he is not going to poo poo them with "Oh dear, you're so bad at managing your diet" crap. Because that person is just going to continue to get fat if that is already one of their symptoms. Its not fun that others notice you're gaining weight, you notice it but are trying your best to live with it and control it, and then you get all of your doctors complaining about it and making you feel bad about yourself... when they could be controlling it with medicine only if they thought of administering it to people. But if they don't know better, 4 months to a year of wasted time in my case equaled 48lbs of weight to struggle with. My endo wasn't going to give me medicine because he thought it wasn't affecting my periods- thank God we cleared that up and that it *was* affecting my periods because I would have been as big as a house right now.
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