Precocious Puberty Support Group

Hello I havent posted in a long time. My daughter has been being watched for precocious puberty since around 8 months. She will now be 3 in December. During this time she has had a regular bone scans and sometimes her bone age would increase 6 months in a 3 month period, sometimes 12 months in a 3 month period and last time no increase at all. Her breasts have decreased and we were hopeful and then they increased. the MRI showed no brain tumors and I jumping for joy. I decieded that I was not going to bring her to the doctors anymore and even cancelled her endo. appt and bam in June pubic hair. At first it was just a strand then a week later another so I rescheduled her appt. They did a pelvic ultrasound and it showed follicles in her overies. I just recieved a call and her doctor has concerns that she has Mccune Albrights Syndrome. Is anyone else going through or have gone through this?? Mccune Albrights Sydrome is rare and there is not that much info on it that would relate to her symtoms. Any advice would be helpful. Thanks
Posted on 08/15/09, 10:08 pm