What is Porphyria
The porphyrias are inherited or acquired disorders of certain enzymes in the heme biosynthetic pathway (also called porphyrin pathway). They are broadly classified as hepatic porph...
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Member Goals
9 goals are being pursued in the Porphyria community. What goal would you like to accomplish?
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| 8 | members have | Create My Own goals |
| 1 | members have | Lose Weight goals |
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MoonBun...
September PhysicalTherapyin Create My Own
Going to PT all through September!
Progress
90 %
MoonBun...
Get Tested for Porphyriain Create My Own
Speaking more about this with my doctor, finding out which tests are viable, and...
Progress
95 %
MoonBun...
Normalize Vitamin D Levelin Create My Own
Eating "safe" D-rich foods, monitoring levels through blood work, & taking suppl...
Progress
30 %
Vitamin D (Count)
12
MoonBun...
MRI Without Panic Attackin Create My Own
I'll bring my husband, take meds, ask ?s, talk to the staff & be as prepared as ...
Progress
100%
Goal Completed on Jul 21, 09
StephE23
Progress
20 %
Current Weight (Lbs)
0
MoonBun...
Start Physical Therapyin Create My Own
Find a facility, see what the transportation options are, and begin once I've fo...
Progress
100%
Goal Completed on Aug 21, 09
MoonBun...
Investigate My Back Painin Create My Own
getting an MRI, following up with my doctor, and asking questions. I need a dia...
Progress
100%
Goal Completed on Aug 9, 09
JenTahC...
Be happy!in Create My Own
learning to take things one day at a time and enjoying the small things that i C...
Progress
0 %
StephE23
get my pain undercontrolin Create My Own
See my doc and try some new medications and therapy!
Progress
0 %
670 days since End Date.
