What is Porphyria
The porphyrias are inherited or acquired disorders of certain enzymes in the heme biosynthetic pathway (also called porphyrin pathway). They are broadly classified as hepatic porph...
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The porphyrias are inherited or acquired disorders of certain enzymes in the heme biosynthetic pathway (also called porphyrin pathway). They are broadly classified as hepatic porph...

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Hematin
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Has anyone used hematin for treatment of AIP? I tried it 25 years ago when it was first being worked on but I became deathly ill with side effects. I have heard that it has been greatly refined but am still very afraid of it. Did anyone try it in the past? Has anyone used it recently?
Posted on 10/29/08, 05:10 pm |
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