What is Porphyria
The porphyrias are inherited or acquired disorders of certain enzymes in the heme biosynthetic pathway (also called porphyrin pathway). They are broadly classified as hepatic porph...
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Phlebotomy for Porphyria
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Tell us about your personal experience with Phlebotomy as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
Posted on 10/12/06, 08:10 am |
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My domestic partner has PCT. He has phlebotomy's about every 2 years ~ it does help alot! The most common problem he seems to have is when he drinks alcohol it really flairs up, 
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Used to have 4 or 5 done and it would clear up some. Stoped a series of 10 last month because of no results' red blood cell levels too low & they can not do them when your being treated for Hep C. Can not take medication also because of Hep C
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