It seems the heat inflames me and aggrivates the rashes. Even though I slather on the sunscreen the heat still affects me. At night I also get chills so I think this DM somehow affects the bodies abitity to regulate its temperature. It is such a strange malidy - so many different issues and affecting each of us a little differently. No wonder the docs are confused.

I am in complete agreement with you Lucky....it does seem like my body can't regulate temperature!!! Most of the time I am cold!! So very strange!!!

Hugs!!!

I can be in the middle of an air conditioned store and the sweat literally just rolls off my face and i turn a sunburned red. People have often stopped me to check if I'm okay and I say, fine, just a hot flash...lol
As far as being outside, I try not to stay out too long in the sun and take a lot of breaks to come back inside and cool off.
Blessings,
Kim

I've heard many people say that DM has changed their ability to adjust to temperature changes, and I'm the same way. I'm only comfortable when the temp is between 70-74 F. If it's colder I get chills, and if it's warmer I sweat and get headaches and nausea.

I think that sunlight, not heat, is what causes my rashes to get worse. I can soak in a hot bathtub (to relieve muscle pain) or use sunscreen when I'm out in the heat without any noticeable effect on the rashes.

Lucky

funny Kim but I do not sweat!!!! What the heat does is drains me!! Even in the winter when I went out I always wear my snow pants so I can sit when and where I get tired outside!!! They work great!! But then when I was inside I guess from being too warm just like the heat outside now is is like the life is draining from my body....I can't function at all!!! Then I loose everything inside literally if you get my meaning...lol!!!

So strange!!

Hugs!!

I sweat and sweat and sweat. Like drenching sweat even in 70 degrees. I can't take the heat. Along with the sweat, I am more weak and get really tired. So I stay inside in my climate controlled house. It is a bummer because there is so much to do in the summer.

So very true I too am stuck in my house!!!! Funny that I do not sweat....never really have!!! Gotta love DM!!!!

Hugs!!!

I got too much sun a couple times last week and ended up with miserable fever, body aches, and chills. Enough to keep me inside! Feel like a vampire - I go out when the sun goes down.

deb g

I sweat at night and during the day due to prednisone. I wake up several times at night because of the prednisone. I actually used to love hot weather but not anymore thanks to prednisone. I try to stay out of the sun because it aggravates my roseacea. I do get tierd very easy but especially when it is warm. I drink cold water and that does help.

okay, i literally have wet tee shirt contests by myself during the day I sweat so much. At night I end up stripping down because my body is on fire and yes its very draining and I still have fevers.

I've said for years my body's internal thermostat is broken. I used to love summer and being able to be outside! Now, I have to carefully plan my outside time because the heat just seems to drain the energy right out of my muscles and I feel like a weak, limp noodle.

I keep my apartment at 72-74 during the day with all the overhead fans going. However, I cannot sleep if it's any warmer than 68 degrees. Go figure. Part of might be that I sleep with an 8" foam mattress on top of my regular mattress and have three eggcrate foam toppers on top of that... Two are the expensive $70 beauty rest ones... The other isca cheap one. But foam can get hot.

This Is great.....thanks so much for all your inputs!!! I've come to the conclusion that this disease sucks big time!!!! Does it get better at all once you are on the right cocktail to bring DM under control???

Hugs!!!

This week we've had it as high as 105 degrees. Next week it's supposed to be in the mid eighties--looking forward to that. Humidity has been high too, but that's supposed to change as well. So I stay indoors with the air conditioning at 78 degrees. Can't stand it any colder because of my Raynaud's. Even just feeling the cold air coming out of the vents bothers me. And my husband can't stand the heat! So we have to compromise.

Oooh, I am the same way with the air vents, especially in the car, triggering my Raynaud's, sends pain all the way up to my shoulders, too. Can't stand heat, can't stand cold - so just where is it a constant 72 degrees year round? Seattle?

deb g

Deb,
Please let me know when you find the place that's 72 degrees year round. I want to retire in a few years and move there.

Lucky