Polymyositis & Dermatomyositis Support Group

Wonderful to hear about the remission!! You have come a long way.
I've only taken the pills. I take 8 all at once on a Sat. evening after dinner. I drink alot of water, because I wake up feeling a bit dehydrated. In the beginning they would give me a headache that would actually start on Fri. evening and not subside until sometime Sunday. Now I only feel dehydrated if I wake up in the middle of the night or that Sunday morning. I find no other side effects.
Best of luck with the new plan.(())
Mare

I started on metho tablets and found they were very hard on my stomach, then I moved to the injections. Found I felt much better on the injections. Took them once a week with folic acid taken the day before. Good luck to you with the change in treatments :)
Leanne

When I took tablets, I only got up to 15 mg before I moved to injection. I took them all at once before I went to bed. One thing I found that help my tummy is I ate a big ole' helping of homemade hashbrowns before going to bed. Not baked potatoes, not mashed potatoes. It had to be hashbrowns. It really helped with the nausea the next day. Don't ask me why. My Oncologist said it probably helped absorb the medication in my stomach.

I have to get my injections next week. I am hoping my pharmacist has been searching for me and had some luck.

I hope the pills work okay for you. I'm thrilled you get to look forward to getting off. I'm so excited for you! Good luck! Let us know how it goes for you.

So glad to hear your news, and hope that you stay in remission. I will pray that your change of treatment goes well for you. Let us know.

congrats on the good news!! no advice, just wanted to say i'm cheering for you. i'll likely be switching from injections to pills soon, so am looking for the same advice...nervous about how i'll tolerate it! hugs and prayers :)

Good for you, I a. In the opposite take 8 a week going to shots when they increase it. 8 same day each week. Which they have on hold because a staph enfection.

Thank you all for your advice and feedback. I am going to give these tablets a try tonight and hope for the best. Maybe I will blend them into some hashbrowns and call it methobrowns (Lexi :) Just kidding. But I will be sure to super hydrate and have something in my belly and pray for the best. Thank you all for your support. I love you guys!
Maruska

I take 7 pills after I eat dinner on Friday night. I prefer the pills over the injection because the injection made my head feel weird. I do not have a problem with 7 pills except for an occasional nausea. Ten pills are a lot of pills and you probably will not feel good. I would ask your doctor that since you are in remission to scale back to 8 pills. The 8 pills will be more tolerable, then slowly scale off the 8 over time. Today, I would check with your doctor about taking 5 pills in the afternoon with lunch then the other five with dinner to avoid the nausea. Good luck and keep us posted.

My doc told me to take all my MTX pills at one time no matter what and that I have to take them with food. Weird taking all those pills at once but if it keeps is well..

Rumour has it that side effects are worse with the pills.
But really, after experiencing how we feel on bad days? Long term?
Good luck pogo.