What is Polycythemia
Polycythemia is a condition in which there is a net increase in the total circulating erythrocyte (red blood cell) mass of the body. There are several types of polycythemia. Primar...
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Hello everyone.
for the past 4 weeks i have not been very well. i have been having dizzy spells, headaches, fatigue and i have managed to lose 15lbs in 7 weeks. i went to see my doctor and she decided to take blood tests. the tests have come back and it says that i have an increased red blood cell count. The nurse says this could be due to the cells remaking themselves. tomorrow i am to go back for more blood tests. i have had a look on the internet and a lot has pointed to Polycythemia. i dont know a lot about it. any information or comments you have on my post are most welcome. many thanks Vikki Posted on 06/10/09, 01:06 pm |
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MY HUSBAND HAS POLY AND YOUR NORMAL RED BLOOD COUNT SHOULD BE BETWEEN 12 TO I6. HE IS ALWAYS VERY FATIGUED. THINK IF YOU TYPE IN POLYCYTHEMIA IN ON THE INTERNET IT SHOULD GIVE YOU MORE INFO AND IF THAT DOESNT HELP TRY ME AGAIN HUGS WENDY 
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If you have polycythemia (PRV or PV)have a jak2 gene mutation,it is usual now to test for this mutation via a simple blood test saving a lot of time as it is difficult & long winded to diagnose any other way.PRV is incurable but controlable, there is also a lot of research going on at the moment, with various drug trials going on here , the usa & france.There is a lot of rubbish on the net some of it may worry you sothe best place for support & up to date accurate info is the MPD support group website,good luck
regards jonh
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The test l had to pick up polycythemia vera was a red cell mass and plasma voulume which was done at dept nuclear medicine in cambridge ,
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Dave
I suspect they will do a jak2 test at some time as its the latest test & what all current research is around.Please look at the MPD SUPPORT web site ,lots of info,a buddy system (which I am a member)if you want to talk to a fellow sufferer,also they have a meeting in early DEC at st thomas's hosp london, which are always well attended & informative.Above all dont worry as PV is controlable. John Taylor
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