What is Polycythemia
Polycythemia is a condition in which there is a net increase in the total circulating erythrocyte (red blood cell) mass of the body. There are several types of polycythemia. Primar...
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POLYCYTHEMIA
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MY HUSBAND HAS THIS ILLNESS. HE HAS HAD IT FOR 5 YEARS. HE DOCTOR TOLD HIM IT WAS CAUSE FROM LIFE STYLE.WHEN HE FIRST FOUND OUT THEY WOULD TAKE BLOOD FROM HIM EVERY WEEK. NOW THEY CHECK HIS BLOOD COUNT AND TAKE IT WHEN IT GET TO HIGH. THEY SAID IT IS THE ONLY CURE. HE IS ALWAYS REALLY REALLY TIRED.MY PROBLEM IS HE WONT EVEN THINK ABOUT CHANGING HIS LIFE STYLE.SO I JUST PUT UP WITH HIM BEING SICK ALL THE TIME. IT GETS TO ME SOMETIMES. BUT YOU CAN TAKE A HORSE TO WATER BUT U CANT MAKE IT DRINK. AND ITS HIS LIFE.I HOPE THERES MORE PEOPLE OUT THERE WHO COULD EXPLAIN THIS ILNESS OR CARE FOR SOMEONE WHO HAS IT. PLEASE LET ME KNOW.
Posted on 03/22/09, 07:03 pm |
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I'm assuming if his doc's said it was from lifestyle then he has secondary polycythemia? There is no known cause for primary, vera, or rubra vera. Iron defficiency will cause fatigue and the problem with polycythemia is that as soon as we ingest iron, it is immediately used up. The most helpful thing for me has been acupuncture. Could you get him to try that? 
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I haven't been on this site for a long time. My Dr. put me on Hydroxuria. That's probably spelled wrong. My count is finally lower and stable. The fatigue is there but I didn't think much of it since I have 4 pounds of metal in my back from scoliosis surgeries. The itchy skin times are not fun either. Everybody has some kind of battle.
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read my post above re pv & exercise my experience is if you exercise regularly the fatigue will decrease also the itching,its not known why.The more you sit the worse it will be,obviously all exercise should be done with doc's blessing.Also see websites MPD support(in UK)& MPD foundation(in USA).Hope this helps,he must get moving,good luck.
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