What is Polycythemia
Polycythemia is a condition in which there is a net increase in the total circulating erythrocyte (red blood cell) mass of the body. There are several types of polycythemia. Primar...
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Interferon for Polycythemia
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Tell us about your personal experience with Interferon as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
Posted on 10/12/06, 08:10 am |
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I have personally avoided Interferon. I am being treated in Asia, and they recommond a similar treatment to what I had in California 10+ years ago. My doctor was against Interferon except in certain cases. 
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I am currently on Pegulated Interferon once a week - I feel better on this than anagrelide (anagrelide made me confused and stopped working). The main side affects that I struggle with are the tummy bloating ( I look pregnant) and the pain on my left hand side spleen/rib area. Other than that I do manage to work full time and find drinking loads of water helps. I cannot drink wine or beer I get drunk too easily - like being a teenager again! I would be very interested to hear if any other people are on pegulated interferon. So far the only tip I can give is to wear jackets - they cover the bump nicely. Also to take Asprin when the feet or hands hurt.
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ikeepbusy, what was your treatment 10 yrs ago/now? i'm curious. thanks for responding. i was dx'd friday by an oncologist.
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