What is Polycystic Kidney Disease PKD
Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (...
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Hello all my fellow PKD friends, I have been trying my damnest 2 find someone who can help me understand my disease better. My nephrologist spend about 10 minutes a year w me and doesnt have much insight, anywho, as i was surfing the net yesterday I stumbled across a VERY interesting article from a Dr Bennet @ a seminar he held, its from 2001, but very educational. Idont know abot you all but i live daily with terrible dull, and chronic pain in my belly and back, this article is eductional in that sense and many others, much more informattive than PKD foundation. So here te adress I want to share it with you all. If there is any of you out there wpain like me i would love to hear from you. Drs think your a junkie, they dont understand that w 90+cysts and 70+cysts in another kidney the daily chore, ie bathing my 3 children, driving, is sometimes unbearable. Anyways check outthe article, I am trying to find a dr who will perform one or the surgerys discussed in this on me. Good luck not to many want to drain cysts or diconnect nerves. Hop you all enjoy
http://www.pkdiet.com/pdf/pkdpain/... Posted on 11/03/09, 03:11 pm |
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as for connecting with people, there is nothing like a support group, on line is not quite like a face to face one but I have been part of online support for a long time and have friends, I mean real friends, who I have never touched, shaken hands with, spoken to, but who support me in my down times and celebrate with me when times are good.
a support group is more than just a place to ask questions, there is as much to gain, if not more, from supporting others as there is from asking for support. you are welcome here with any and all questions relating to your PKD. besides that, if you have great news to celebrate, a wedding, birth of a child or grandchild, anything wonderful you can always share it. sadnesses, even the loss of a beloved pet, can also be shared. thats what support is about, thats what friendship is about. as to your pain, I never suffered much pain with my PKD but there are other who will be able to answer your questions. 
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