Polycystic Kidney Disease (PKD) Support Group

Oh Larry, I hope this helps you, please keep us all informed.

Lots of love,
Norma.... and I really mean that!

So will they actually open you up to scrape or will they insert a needle to drain them?

There will be 4 small holes. It will be done laparoscopically.

The fluid is collected and removed. I doubt they are drained, but I really don't know.

I think they literally rupture as many cysts as they can get to robotically and remove a part of the cyst wall so that the cyst is unable to reclose. Then they remove the fluid from the cysts as it collects in the abdomen. A drain tube is left in for a while to collect the fluid that weeps out from the cysts and the surgery.

It is supposed to be quite painful for a few days and approximately 2/3's gain some relief for 1-2 years.

thank you for the info. I read 85-90% found immediate relief and 62-67% found pain relief after 2 years.

http://www.medifocushealth.com/NK01...

So curious how this works for you as they are looking at these procedures and/or possible early transplant due to severe pain not controlled. Please keep us updated and I hope you find relief.

hope it goes well and you won't be in pain after it heals.
be sure to update us because many others may benefit from your experience.

Where are you having the procedure? I ask because my neph says 'deroofing' cysts is a tricky surgery and you don't want just anyone doing it. He sends his patients from Florida to Brigham Women's - quite a distance - to be sure they get the best care. I hope knowing relief is coming makes the next month fly by!!
Lisa H

KU Med Center
David Duchene

http://www2.kumc.edu/urology/facult...

That's interesting. I didn't know that urologists did the surgery. Anybody else have this procedure done?

I had approached another surgeon that I used for gastric bypass and my wife used for taking her gallbladder out. He is also a trauma surgeon. I asked him if when it was time, would he remove my kidneys. He told me that kidneys are the sole domain of Urologists. He said any time he is working on putting someone back together (trauma) if there is kidney work, he has to call in a urologist.