What is Polycystic Kidney Disease PKD
Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (...
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PKD and running
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I am new to this group and am delighted at the number of members and the support it seems to offer. I was diagnosed at age 16 (I am 26 now) with PKD. I inherited from my dad who had a transplant in 1994. My GFR is already at 30-35% and my creatnine is 2.3. I am headed for a transplant within the next few years most likely.
Anyway, my question is this: does running affect PKD? I am thinking of joining a running club and after 8 weeks we will compete in a 5K. I ran some last night to "practice" and feel some mild pain in my kidneys today. I already walk at least 3 times a week and sometimes do aerobics and weight training, and have never had any problems. I am afraid that the jarring of the running will cause me unnecessary pain (and possibly a rupture), but I do know someone who competed in marathons while on dialysis. Maybe it is unique to each individual? Any feedback would be appreciated. Thanks! Posted on 09/03/09, 10:09 am |
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Not a runner but i am a bike rider, plan to go and do a metric (62 miles) in about 30 min. :-) The running is a great exercise, don't know about the bouncing up and down and the kidneys but others seem to take it well. Whatever the form, exercise will help you deal with the issues of PKD. It produces the endoephans first off, VERY important. For me it gives me hours of peace while riding, i can get in another mind set and forget about things. Also for me it helped restore my heart which was beating at 10% when my kidneys failed (2 and 1/2 years ago) and now is at a normal 55-65% :-) My heart Drs. are amazed! i feel better than i did, at 52 i hope to get 7000 miles in this year though i am a little behind right now at 3600 but the cool fall weather is near!! Anyway i would say to run and see what happens, you have a long time to live yet so you might as well make something of it! 
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about the advice re bouncing up and down, good shoes will help that as well as developing a good gait. it is also helpful to exercise your abs to develop a natural girdle that will hold things tight. situps are good for that but an easy thing to do is tighten abs each time you bend down and when climbing stairs.
ab tightening can be done anytime, while driving, watching tv. as your muscles develop in abs tighten even more. you'll look better and help keep things tight in ab area. after my surgeries I got lazy but still always tighten when bending and stair climbing. just a habit.
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I"ve been dealing with pkd for over thirty years and the only exercise advice I've gotten really is to avoid contact sports and anything that would raise my bp such as lifting heavy weights. Aside from pkd I h ave some joint issues so exercising is not as easy anymore and it pains me. I never liked sports much but loved walking the dogs, weight training, heavy yardwork, and gardening. Anything that keeps one moving and in good shape is great. I think it's wonderful that some of us can run. If your doctors say it's ok then run for me too lol Lin.
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