What is Polycystic Kidney Disease PKD

Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (...

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Advice:
Pinching when I bend
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Hello,
I am new to this group and need some help. I can't seem to find anything on this issue I am having.

I can't seem to bend much to the side or twist around without getting a horrible pain up and under my right rib cage area. It stops me in my tracks. I can't move except for straighten up and wait for the pain to go away. Which can take from 1 to 5 mins.

What I want to know is if someone has or had the problem and what did you do about it?

Thank you, I am so excited I found this web site.
Michelle
Posted on 05/08/09, 03:05 pm
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Reminder: This is a support group for Polycystic Kidney Disease (PKD). We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Advice:
Email me when others reply to this topic help
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Reply #1 - 05/10/09  8:03am
" Hi Michelle, welcome to the group. I'm sorry you're experiencing discomfort and pain. I haven't been able to bend sideways or twist round for some time now, owing to the size of the enlarged kidneys and liver. I just don't bend. Bending forwards is also difficult. Cutting toe nails is a real problem. It's the pressure of organs being squashed, becuase space is tight if your kindeys/liver are enlarged. I just try to avoid the uncomfortable positions, and grit my teeth if I can't avoid it.
Take care. "
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Reply #2 - 05/21/09  12:20am
" Chewitt's right...not much else you can do really...

I'm super against pain pills....they don't work really...and you can become addicted

get comfy! That's all that matters....I have like 8+ pillows on my bed....I only walk when I can....I just take it easy and slow...

Breathing exercises have helped me tremendously too :)

*feel better! "
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Reply #3 - 06/21/09  8:31pm
" Yup, years before I knew I had pkd and pld I noticed it was hard to bend over and my jeans I'd worn for years started to get too small. I thought I was just getting fat. The key is to wear loose fitting clothes. The thing to realize is that, when you bend over, your organs are compressed. This can cause pain, but it can also cause your organs to swell in response in my experience. So expandable waistbands and no pressure on your stomach and be well. "

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