What is Polycystic-Kidney-Disease-PKD

Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (...

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Saturday November 28, 2009

Positive Stories

  • Friday, February 29, 2008

    Friday, February 29, 2008 | A Positive story

    morn everyone!  well its off to worcester mass for the special olympics weekend, i help coach the team,  they put us up till sunday, it will be fun.. hope everyone has a good wekend, hugs and prayers to u that are  in pain..dinz..   carpe diem!

    1 Recommendation

    6 Comments

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  • mothers day

    Sunday, May 11, 2008 | A Positive story

    happy mothers day to u all, where would ur children, siblings, to u married mothers where would ur hubbies be without ya.. carpie diem!   dinz

    1 Recommendation

    3 Comments

  • I've been isolating forever, in this apartment 24/7, with the exception of when I've had to go to appointments, or the grocery store.  I'm in pain almost always, and my dystonia has really been going wild; my whole body (including my head) moves this way, & that.  I'm very embarrassed to go out into the "public eye" most of the time, as I feel so self-consc...

    2 Recommendations

    3 Comments

  • Hard times...regular folks are amazing

    Thursday, September 18, 2008 | A Positive story

    As I watch our stock market tumbling I find myself feeling cynical, how did these folks get us IN to this mess!  I then remember one of the the coolest coolest things about my job....THE PEOPLE...I get inspired all over again and I have to think we will all be ok.  When I do talks in schools or community groups I tell kids about the long haul medicine entails&nb...

    4 Recommendations

    23 Comments

  • APKD 'light'

    Saturday, October 18, 2008 | A Positive story

    I recenty had an ultrasound on my kidneys and liver and an echo-cardiogram.  The ultrasound detected one small cyst on my right kidney and two 1 - 1 1/2 cm. on my left and cysts on my liver.  The echo-cardiogram showed a heart murmur.  The nephrologist said that I had little to worry about with my kidneys.  I am on coated aspirin 81mg for my heart.  I am getting used to n...

    1 Recommendation

    2 Comments

  • Thankfullness for Thanksgiving

    Saturday, November 15, 2008 | A Positive story

    I am so thankful for so many things but most of all that I can rest on weekends.  Also the supportive husband who encourages me to rest and take it easy.  So here's the hard part!!!  I am a clean freak and even thou we have a small house I want it clean.  I want to wiped it down from top to bottom every month.  Then I can dust, vac and other cleaning in between.&...

    1 Recommendation

    2 Comments

  • life is good

    Monday, January 12, 2009 | A Positive story

    had a nice with x-mas with t, my AA  birthday is wed, i went to new jersey, giants lost, but i ate good

    1 Recommendation

    2 Comments

  • Break DOWN or Break THROUGH

    Tuesday, February 17, 2009 | A Positive story

    My path to inner peace seemingly began with a nervous breakdown..Twelve months of agony and hell. Pain levels shot beyond the 10 that I equate with near death powers.Questioning and doubting myself, my God, my world.....Self-help books, fibro mags, research that, at times, scared the living right out of me, searching for the magic something, anything, to save me..
    When I stopped going around my d...

    3 Recommendations

    6 Comments

  • PKD

    Tuesday, March 17, 2009 | A Positive story

    Even though everyone is different through this disease process, I just wanted you all to know just keep fighting it.  You can survive! I know its scary and there are a lot of questions, but you just need to take one day at a time, take care of yourself and don't let it totally ruin your life.  There is a light at the end of this journey. Eventually you will either end ...

    1 Recommendation

    1 Comment

  • Sexy figure

    Wednesday, November 11, 2009 | A Positive story

    One thing I had always been loving about myself is my body figure. I have dozens and dozens of bikinis which beasically tells you about my obsession. I don't want a beer belly filled with large liver and kidneys!
    Is my motive for beating this disease too cosmetic???? Maybe. But I love my life being a lady with good body. I hate when doctors say it doesn't affect the quality of my life.&nb...

    1 Recommendation

    5 Comments


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