What is Polycystic-Kidney-Disease-PKD

Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (...

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Tuesday December 1, 2009

Painful Stories

  • My best friend died...

    Friday, February 1, 2008 | A Painful story

    Scooter & Zeppelin
    ...
    This is Scooter and his BF, Zeppelin. Zeppelin passed away about 3 years ago. Now I am setting less than 2" away from Scooter while he is dying. Scooter is 14 yrs. old and my dearest friend. Danny is coming home on emergency leave to take us to the Vet, but even though he wagging his tail while I pet & Talk to him I know he leaving me. I tell him everything - Zep...

    1 Recommendation

    2 Comments

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  • What a headache ugh

    Sunday, July 6, 2008 | A Painful story

    Last Tuesday, out of the blue my right kidney flare up. I was out of my percocet and call my dr for refill. By the time thursday roll around I was out of my mind with pain. When my dr assistant called on thursday after I left another message for refill; she knew I was in pain cuz I could not focus and talk to her straight. I was having hard time catching my breath. She did notice that I had calle...

    1 Recommendation

    1 Comment

  • Don't Wanna Dream

    Saturday, July 19, 2008 | A Painful story

      I wish that I could sleep...but I am afraid that I will dream...
    I use to hardly ever  remember my dreams.  It use to make me wonder why I didn't remember them.  It really upset me!  I was wishing that I could, I knew that they always told me something!   Something, that my conscious couldn't see, hear, or feel or did it?
    When I was a little gi...

    1 Recommendation

  • lost my entry

    Sunday, July 20, 2008 | A Painful story

    I wrote soooo much and it's all gone!

    1 Recommendation

  • So Peacfully Painful

    Wednesday, July 23, 2008 | A Painful story

    Here I am again. Recently miscarried, for the 4th time. 3 were in the past year. The fetus seems to stop growing at 8 weeks. This time around, it was a bit more difficult. The last few times, the baby never had a heartbeat. This time, I found out i was pregnant in May. I had an ulstrasound at 7 weeks, and there it was, a baby with a heartbeat. Then, the next week I experienced bleeding, but they ...

    1 Recommendation

  • Thanks for all the support NOT

    Monday, September 15, 2008 | A Painful story

    I can't believe still no responses to my journal? No support? Some web site. Ok This is it from me I'm saying good bye. I was hoping at least one person would be surfing the journals like I did and give me a little support and no one did. That's sad. So I'm deleting my account. Hope you all have a good day. Good bye

    1 Recommendation

  • OMG I CANT BELIEVE MY FAMILY THINKS IM USING DRUGS

    Wednesday, December 10, 2008 | A Painful story

    I just returnedfrom avisit that exhausted me frommy cfs and have been accused by my entire family that I am using iv drugs...never have and never will!
    I had a pudding and left a spoon besside the bed at my cousins house.  It snowballed from there andnow I am labeled
    What should I do.  This has hurt my mom and dad and have put bad thoughts into their head 

    1 Recommendation

    8 Comments

  • Migraine pain and prayer

    Wednesday, April 22, 2009 | A Painful story

    My head hurts so badly. I can't cry because it makes the pain worse.Yet the tears have a mind of their own, so it seems. I want to pray but for what exactly? Do I pray for the pain to stop? or do I pray to walk through it and find the cause and slay the dragon? I am tired. I will fight if I need to but i certainly prefer not to.
    My ears are cracking. My jaw hurts and is crackling. My head feel...

    1 Recommendation

    1 Comment

  • I wish you were here...

    Wednesday, August 5, 2009 | A Painful story

    This journey has led me down many roads.At 57 years of age I am still finding myself.Or rather I am looking for me and finding nothing substantial.
    reaching out to loved ones is wreaking havoc in my mind. My spirit is grasping for a welcome-home.My body responds with tears and sadness.To keep pain at bay, i must redirect my mind to a safe place..
    I announced the joyful news of my daughter's pre...

    1 Recommendation

    1 Comment

  • Focul Segmentalglomerulo Schlerosis

    Monday, October 5, 2009 | A Painful story

     
    In the last and only entry, I advised abot my son with FSGs. I have been trying to figure out/find out the difference between FSGS and PKD.
    That being said, my son is sometimes irtritable, feels terribly hot and can't sleep at night. He sometime feels nauseous and won't eat anything, has head and stomach aches.
    After dialysis, he sometimes is very active, too active to be very puzzlin...


    1 Recommendation


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