What is Polycystic-Kidney-Disease-PKD

Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (...

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Monday November 30, 2009

Frustrating Stories

  • Not getting anywhere today

    Monday, March 17, 2008 | A Frustrating story

    Spent most of the day trying to get caught up with paperwork and other medical issues.
    Tried without any luck to reach the local social security office in regards to my medicare status.
    Spoke with my insurance company about a few problems.
    Tried to set up an appointment which my doctor told me should be in four months from the last visit.  He is not available unitl Sept.  I am due to see h...


    1 Recommendation

    2 Comments

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  • Will it ever end?

    Monday, March 31, 2008 | A Frustrating story

    It was such a dreary weekend.  My daughter took me to get my hair fix cuz the gal 3 wks ago chopped my hair up.  The hairdresser I knew before I let this other gal cut my hair said OMG what happen!  I explained what happen.  She said I shouldve came back and got my money back.  It could not be fixed right away.  So the gal fixed my hair and layered the way it suppose...

    1 Recommendation

    2 Comments

  • Feeling low and in pain

    Sunday, June 29, 2008 | A Frustrating story

    I woke up in pain where I couldnt catch my breath.  I hate when my kidney acted up like that.  I've been trying so hard not to let my health get me down. It so hard.  I'm tired of missing out of life when I have so much going for me.  I don't like looking in the mirror anymore seeing how terrible I look.  I look so tired and worn out.
    I guess I am feeling sorry...

    1 Recommendation

    1 Comment

  • Another frustrating week

    Saturday, July 12, 2008 | A Frustrating story

    Another week went by still feeling like crap.  No matter what I do, nothing seems to work.  We had bad weather and it play havoc on my sinus which in turn play on my kidneys.
    Today I was going bonker with the ringing in my ears. Even though I have hearing loss; I kept hearing the phone ringing like every half hour all day.  I couldnt focus or even lay down and take a nap.  Than...

    1 Recommendation

    2 Comments

  • KIND OF SAD WHO ME????????????

    Sunday, July 20, 2008 | A Frustrating story

      TO WORK OR NOT THE WORK IS THE?????????? I JUST FINISHED WRITTING A NOTE IN THE OBITUARIES WHILE WARMING MY TEA. YUM FOR THE TEA. I PLAN ON GETTING TOGETHER FUNDING TO WALK FOR POLYCSYTIC/WALK/RUN. WHICH I TAKING PLACE THRU OUT THE USA.VERY EXCITED ABOUT THIS LOTS OF INFO ON PKD@PKD.ORG.I'VE BEING CHATTING WITH LOTS OF GREAT PEOPLE ONLINE THRU DS WONDERFUL EVERYTHING ABOUT THE SITE. I&...

    1 Recommendation

    1 Comment

  • laughable

    Wednesday, August 13, 2008 | A Frustrating story

    Well, how long has it been?  TOO long I fell off AGAIN!  But, I am still reading and looking for things to stay busy and keep my spirits up, I am still talking to God and really I am trying to eat well.
    But it is difficult. I did slow down on the diet pop, 3 times a week if I am lucky. I drink green tea and water.
    I have been walking 2miles most nights with mt husband and our dogs it'...

    1 Recommendation

    4 Comments

  • Still feeling Sad

    Sunday, September 14, 2008 | A Frustrating story

    I'm still feeling sad at the loss of my best friend my bird Libby. I'm even sadder that I have not gotten any responses to my journal about him? This is too much for me to handle so I will wait a couple more days but then I think I will delete this account. This is not healthy for me. Hope you all have a great day.

    1 Recommendation

  • Don't believe what my goals say...

    Saturday, July 25, 2009 | A Frustrating story

    As of 7/25/09, I only am 7 days smoke-free; I don't know how to edit "my goals"; I tried to do so, but just came back here.  Oh well!  Ciao!

    1 Recommendation

  • is this how it is !!!!!

    Thursday, October 15, 2009 | A Frustrating story

    hi every one im 41 yrs old and was diagnosed at 18.ive lived a normal life and been able to push aside the fact i have a disease.apart from uti infections and high bp ive been relatively ok.when i was pregnant with my 2nd child i took really ill, my kidneys stopped workin and i had my daughter early.it took a few months but i recovered well.about 4 yrs back i went into hospital with a bad uti and...

    1 Recommendation

  • A language lesson

    Friday, November 6, 2009 | A Frustrating story

    Today I feel as though  my thoughts are many paragraphs  attempting to form one sentence.

    1 Recommendation


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