What is Polio
Poliomyelitis, often called polio or infantile paralysis, is a viral paralytic disease. The causative agent, a virus called poliovirus (PV), enters the body orally, infecting the i...
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Hi I just joined the Polio Support Group. I am having the symptoms of post polio and am really worried. My mom said about the only way that it can be verified is for me to have another spinal tap, ( I had one when I was 4yrs. old) Any info someone can give me will be very appreciated.
Posted on 06/06/08, 11:06 pm |
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Hi Lady - I just joined also. I was diagnosed with post polio syndrome about 10 years ago. I was having a lot of pain in my left leg and my family doc had diagnosed it as arthritis. When arthritis meds didn't help and it worsened, I consulted a rheumatologist (arthritis specialist). He said I didn't have arthritis and referred me to a physiatrist, a doc specializing in rehabilitation medicine. That doc took a case history, did a physical exam and also did a test that checked nerve function in my leg, then told me I had PPS. No spinal tap required. I have since been evaluated by Dr. Lauro Halstead and his team at the National Institute of Health in Washington D.C. Dr. Halstead agreed with the PPS diagnosis. Again - no spinal tap!
I see that it's been several months since you joined the support group. Hope you're doing well and have a great Thanksgiving! I'm 55 years old and have lived in Anacortes, Washington for 2 years. My hubby and I moved here from Anchorage, Alaska, where I was born and raised. It's wonderful being away from cold winters! We really like living here in our small, friendly town. I enjoy reading, knitting, quilting, sea kayaking, boating and spending time with my 10 month old grandson. I would enjoy hearing from you sometime. Marilyn 
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Hi, I personally say forget the spinal tab. I don't know how this proves anything. You already know you had polio. Post polio syndrome has a big element of overuse. As you age the parts damaged by polio show signs of "wear and tear". There are institutions who specialize in treating post polio, but you may have to travel to get evaluated. Reply #1 mentioned the National Institute of Health in Washington, DC & Dr. Halstead--he's the top expert in post polio. Also, you might want to get some books from a book store on the subject of post polio. I found the book "The Polio Paradox" by Richard L. Bruno, H.D., PhD., informative & helpful. Plus, a physiatrist, a rehabilitation medicine doctor, is a medical speciality that will most likely be able to help you with physical therapy, information & pain management, if that is required. Some doctors don't have a clue about post polio, so you may have to do some searching to find a doctor who understands what you are going through. I hope you are coping well. The best advocate for you is you! Take care!
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