Pheochromocytoma Support Group
A pheochromocytoma is a tumor of the medulla of the adrenal glands originating in the chromaffin cells, which secretes excessive amounts of catecholamines, usually epinephrine and norepinephrine. Extra-adrenal paragangliomas are closely related, though less common, tumors that originate in the ganglia of the sympathetic nervous system and are named based upon the primary...
Endocrine System
Pheochromocytoma Support Group

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Wanted to say hello. My family carries the BRCA2 gene defect and as a result, I have preventive annual screenings and... READ MORE
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Hello all,I am new to the group and I have been experiencing some symptoms that when I googled them, gave me 3 options,... READ MORE
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I'm now 3 months post surgery after finally being diagnosed with a pheo.For the last 2 years I was experiencing... READ MORE
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Ive suffered with all Pheo symptoms for 12 months and was admitted to hosital 8 months ago for 8 days with BP of... READ MORE
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Tell us about your personal experience with Surgery as a treatment: Has it worked? Have you had any issues? Any... READ MORE
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I am wondering if anyone at all is going through anything similar what I am. I first went to see an endocrinologist... READ MORE
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About 4 months ago I started experiencing dizzy spells, upset stomach, pounding heart beat with my pulse rate in the... READ MORE
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My daughter is having 24 hour urine test for Pheochromocytoma this week. Please, any information is welcome. Please... READ MORE
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I was diagnosed with a phaeochromocytoma last year in August after becoming ill the previous year following the birth... READ MORE
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I had the 24 hour urine tests for a pheo and my results came back high as follows: normetanephrine 862 ref 52-310... READ MORE
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Hi there,I'm currently waiting for bloodwork results to see if I have a pheo. I am 34 years old, female, and have had... READ MORE
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Which is better blood or 24hr urine for pheochromocytoma ? I do have all the symptoms. I had the blood test, doc says... READ MORE
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I keep having these "attacks" where my blood pressure goes up drastically, my heart starts pounding out of my chest and... READ MORE
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Scared I won't get to raise my little ones :(
Posted by: moonsetmamaLast Reply: princeofthenight9Hi all, I am a 26 year old mother of 3 who has been symptomatic on and off for about 8 years. Waiting on results for a... READ MORE -
Hello- I recently have been diagnosed w pheo. I've had two 24 urine tests and lots of blood tests among a few other lab... READ MORE