What is Phenylketonuria PKU
Phenylketonuria [PKU] is a human genetic disorder (though it is possible to exist in mice), in which the body lacks phenylalanine hydroxylase, the enzyme necessary to metabolize ph...
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I am looking for all of the information I can get about PKU. My son is 8 and has classic PKU. He feels alone with his diet. If he knew someone his age with PKU, he would accept his diet easier... The other kids at school ask alot of questions and dont understand. I have gone to pkuworldlink, and found a couple of people in Missouri. Nobody his age yet. If you have any positive comments, or know of other sites for my son please reply!
Posted on 01/15/09, 02:01 pm |
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i suggest facebook big time! there are SO many facebook pku groups it's ridiculous. they've helped me a lot. i know that there's one for kids, so check that out! also pkutree.com is wonderful! good luck! 
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