What is Pemphigus
Pemphigus is an autoimmune disorder that causes blistering and raw sores on skin and mucous membranes. As with other autoimmune disorders, it is caused when the body's defenses mis...
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Cyclophosphamide for Pemphigus
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Tell us about your personal experience with Cyclophosphamide as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
Posted on 10/12/06, 08:10 am |
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I took Cyclophosphamide 250 mg for first three months. During this time, I was losing hair so much that I shaved my hair off and wore wigs. My WBC count fell to 2.0 - upon which my dosage was reduced to 100 mg. After a month I was put on 150 mg and have been continuing on this since Nov 2007. My hair has grown back and my WBC numbers are looking pretty good. I drink a lot of water and try to make sure the medicine does not stay in my bladder which means going to the bathroom several times a day and night. So my experience with this medicine is not too bad as my disease has not come back so far. I am now tapering my prednisone. YEAH!! Hope this helps someone,
Lakshmi PV since July 2007 
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