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Cyclophosphamide for Pemphigus
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Tell us about your personal experience with Cyclophosphamide as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
Posted on 10/12/06, 08:00 am |
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I took Cyclophosphamide 250 mg for first three months. During this time, I was losing hair so much that I shaved my hair off and wore wigs. My WBC count fell to 2.0 - upon which my dosage was reduced to 100 mg. After a month I was put on 150 mg and have been continuing on this since Nov 2007. My hair has grown back and my WBC numbers are looking pretty good. I drink a lot of water and try to make sure the medicine does not stay in my bladder which means going to the bathroom several times a day and night. So my experience with this medicine is not too bad as my disease has not come back so far. I am now tapering my prednisone. YEAH!! Hope this helps someone,
Lakshmi PV since July 2007 
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