Parkinson's Disease Support Group

Hi, Peachybum.

I attended my mother's last appointment with her PD-neurologist three months ago, at which time he had just returned from a big medical conference re: PD held in Paris. The bad news, he said, is that stem-cell research doesn't look as promising anymore as previously thought. The good news, he said, is that there will soon be a variety of new drugs coming onto the market to treat symptoms and with less side-effects. I know it's not the answer you were desiring, but I hope it gives you some comfort...and hope.

I will be joining my parents on my mom's next appt. to the same PD-neurologist on Tuesday and will try to get a bit more info. for you. I'll pass along anything that I find out.

My MD said there will be new drugs ouy next year

I don't know how far along in her diease. YOU go through stages ,but it in some works very slow. SOME fast.My doctor tells me i am in the last stage. I AN IN A WHEELCHAIR,My automice nervous system is not working the way it should. My bowels will not move, kidneys not in control. ann all my degestion track is so messed up. it stays swollen my legs and also my stomach is the same all the way down. Ilook about 6 months pregnant. My doctor also said most likely a heart attack a blood clot Something that has nothing to do with PD will cause death. But he said complations from pd sometimes will happen. THIS IS DEDE MY CP CRASHED AND I CAN NOT GET ON WITH THAT NAME. ALSO YOUR EYES REALLY GET BAD . VISION IS SO BAD I CAN'T SEE CP MUCH. AND I AM SO WEAK I STAY UP LONG ENOUGH TO READ MY EMAILS. iF YOU WANY TO ASK A QUESTION i WILL GET BACK TO YOU AS SOON AS I CAN. dede/ ANGELASHLYN NOW. i WILL BE PRAYING FOR YOUR MOM.

I imagine the emphasis right now will still be in improved drug therapy to control symptoms and perhaps slow the degenerative process, and to improve the drug delivery systems. Stem cells, or variants of these are a long way off -possibly they can lead to an improved dopamine delivery system right into the brain, but without understanding the specifics of the disease process this is difficult!

C

I am attending the HOPE Conference in Seattle, Washington on November 9th. They are suppose to have a lot of information on new research and medicines, etc. for patients and families. I will post what I find out from the conference.

As a follow-up to my 10/22/09 note above, I was unable to follow-up with my mother's PD neurologist about the new drugs coming to market at last week's appointment since we ran out of time, unfortunately.

I did, however, read that advances in gene therapy look promising. Here's a link to one of the articles: http://www.pdtrials.org/en/clinica...

HI PEACHY.I THINK FIRST IS A GOOD IDEA TO CALM DOWN.I NOTICED LOAD AND CLEAR WHAT YOU SAID,WHICH WAS NOTHING SPECIFIC.I HEARD WHAT YOU DID NOT SAY EVEN LOUDER.I THINK THIS IS CLEARLY A CRY FOR HELP.WITNESS THE NUMBER OF CHATS OU ARE OPENING.BE AWARE THAT DEPRESION IS PART OF THE CONDITION AND IT IS STILL TREATABLE.
STEWART/ALIVEO

Hi Stewart, im not sure about your answer , although l appreciated it , thanks. I dont suffer from depression im sure of that, l do get rather pissed off that l have pd, but thats okay!

I am a very spur of the moment person, so what i think in an instant i throw it a daily strength for some answers

Peachy, I too, get pissed more than depressed. I understand completely how you feel. I had a "honeymoon" with sinemet recently that seems to be tapering off and the "strangeness" is slowing returning. How unfair! Good news is prayer, nutrition and exercise works better than anything. And no side effects.

I just returned from YOPD conference in Dallas which was amazing and fantastic but they never referred to new medications coming out.

Thank you Schells for completely understanding where im coming from!! :)

Thank you sandharbr3 for the link , l will visit it now!

I do wish some serious money would be thrown towards pd research, here in Australia we it is called the orphan ilness, as everything else seems to get funding. MS , Cancer receiving approximately $35.00 a head for those sufferers, compared to PD $3 per head in the research department,

as most people class it as an old person disease, when its not

angelashlyn , l wish you so much love from me, and i wish the cure more for you than me