Parkinson's Disease Support Group

My mom has had alot of problems with pain in her joints, bones and muscles. The doc was pretty sure it was more than arthoritis but more likely related to the PD.
My mom doesn't have the tremmors yet but, she has next to no more memory and struggles with carrying on any long term conversation.
Not sure if this helps or not but I'll be praying for you no matter what.

Thank you for sharing. And as a mom and daughter, thanks for being a good daughter and being there for you mom.

my doctor has told me that i have dystonia parkinsonism. sometimes its happend that i dont have strange enough, to walk to much, and its expecially hard in the morning, i feel sick, head acke and do have stomack problems. but when i takes my medicine i feel beeter and all that symptoms go away. i dont feel any progressions of this desease its the same as it was. i trying to used less of this drog (med) that i take and thats why i feel pain in my right arm, muscles and my nervs. i know that you take medicine which can have some side effects and maybe to cause to feel the way that you are feeling. love

Katarina, depending on the med, you cannot just stop taking it. You think its bad pain now, once that happens and you don't take it, what a problem then.

Thank you ladies for sharing. I begin my day, before my feet hit the floor praying for my 'sisters of Dystonia, Parkinson' etc.

Have blessed day my friends!
Deanna

Hi, Deanna.

We crossed paths recently in the DS group for Dystonia. Nice to see your photo and cross paths again here.

My mother had aches and pains in her arms which, two years later as her symptoms worsened, led to the diagnosis of PD. About two years ago, she started complaining more and more about back and hip pain and spasms, which recently led to the diagnosis of Dystonia, too.

There have been noticeable improvements in her physical well-being since being treated now for both illnesses, and we are hopeful of more improvements. As of last week, my mother has returned to a center for physical therapy to help correct her Dystonia-impacted posture.

As for the stages, I don't see them as a set of rules since, with changes in drug therapy, exercise and/or phsyical therapy, etc. one can fluctuate between the various stages. My mother was, easily, Stage 4 in her PD until she was diagnosed with Dystonia. Since receiving treatment for Dystonia, she's back to Stage 3. However, on any given day, she can go from one to another. In short, focus less on the stages and more on what can be done to help improve your physical health, pain/discomfort level, movement, and mental and emotional well-being so that you have the best day possible each day and for as long as possible.

I see that you live in Jacksonville. I spend one day per month there and, if you're interested in and able to meet (perhaps for lunch?), please me know. No pressure to meet, just thought I'd suggest it. :-)

Wishing you many more good days than bad,
Iris

We have a Dystonia Support Group here in Jax. The next meeting is next Saturday if your interested across from Regency Mall in a conference room at that library.

It'd be great to meet you otherwise. What city do you live in? What brings you to Jax?

Deanna, I'll respond separately. :-)