What is Parkinsons Disease
Parkinson's disease (paralysis agitans or PD) is a movement disorder often characterized by muscle rigidity, tremor, a slowing of physical movement (bradykinesia), and in extreme c...
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looking for a Neurologist in Cleveland
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I would appreciate any names of Neurologists in Cleveland who work with Parkinson patients. If they are also Movement Disorder Specialists that would be even better. I have been going to one here since I was diagnosed 9 years ago but he seems to have lost interest since I opted not to have the Deep Brain Stimulation surgery. My meds are so messed up that I need to start from scratch with an evaluation and someone knew.
Posted on 05/13/09, 05:05 pm |
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This is a little off the subject but I wonder why you didn't go for the surgery. You said that your medication was messed up, but maybe your doctor thought the surgery would be the best way, but maybe you want a second opinion. I know of a man who had the surgery and he doesn't take any meds at all now. You wouldn't even know he had PD. I also have another friend who has terrible tremors and has been waiting almost a year just to see a surgeon about that operation. He is almost 70 and they don't usually want to perform it pass that age, so they may try to go to the States to have it done. It's just the waiting and lack of doctors that make it hard around here. 
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I see Dr. Sweeney at the Cleveland Clinic. He specializes in Parkinson's and Movement Disorders. Very thorough. I also reccommend that you take your significant other or caregiver to ask the questions that you may not remember. If you want his number, send me a message and I would be happy to forward it.
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I was going to suggest you try the Cleveland Clinic also. Before my mom went into the nh she was seeing Dr. Novak, in Strongsville, affiliated with the Cleveland Clinic satellite office there. He was young, but was very compassionate, interested,and thourough. Good luck.
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The same thing happened to my wife. The first neurologist was ok in the beginning when it was simple, but as time progresssed new meds were added and pretty soon I didn't know what was causing the problems- meds, Parkinson's or the combination of the two. I found a new specialist and we made the decision to start a fresh. The Dr. put her in the hospital and withdrew all the meds except the sinemet. She had to be monitored very carefully while she began the new regimen. After 4 days the Dr. said it was ok to take her home to finish upping the dosages, etc. At first it was hectic, but with time things got better. In her case it was a balancing act in getting the sinemet, selegeline, seroquel, and clonazepam to all work together. He added the Exelon patch later. Of course my wife's problem is more complicated, but I think her situation might apply to you also. I would certainly go for
DBS if that was an option, but that only works for a small group of people- those people who have pure Parkinson's.
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