Parkinson's Disease Support Group

Hi Kathy, I'm fairly new to this group as well and I don't know that I can give you much advice. I can relate to your leg pain and difficulty walking as I struggle with this also. I do spend long periods sitting at the computer and my pain and difficulty walking are particularly bothersome when I get up ( with difficulty)and struggle to walk. I'm trying to get up and change position more frequently and have started to exercise using a video that is appropriate for many health conditions including Parkinson's. I think that maintaining my range of motion and just plain moving has helped . I also take Ibuprofen which does help. Also I have gained weight ++ which I know is affecting my mobility and pain! I haven't been motivated to deal with this yet!
When the pain is intolerable, I use " Dr. Ho " which is an electronic muscle stimulation and massage machine. Friend had recommended this and it has been a life saver. (just google Dr-Ho}
I also use a cane as needed and also use trekking poles ( similar to cross country ski poles except no snow) . These have helped with my balance and stability. Lately I have used a mobility scooter at the mall which is available through customer service.
Hey! I have more to share than I thought !
Of course there is one BIG resource that is getting me through this struggle with Parkinson's and that is the prayer support of friends and my faith in God. He is my strength when I am weak.
Hugs, Norma

Kathy,
NormaC recommended everything I would have.

laura

I am a new member. I was diagnosed with attaxia, it is the start of Parkinsons. I skake usually. i too, use a cane. Because i fell off our back porch and crushed and broke my right wrist.My right side is the worst.I dont have much stength in it.

Hi There - I get terrible leg pain as well. Mine is mostly in my left leg (my tremor is also on the left) and my Physical Therapist has told me to use a rolling pin on my thigh and calf muscle when it stiffens up and gives me that much pain. It works like a charm!! My kids looked at me strange the first time they came in the family room and saw the marble rolling pin next to my chair but it helps! Only wish I could find a small one for my shoulders and upper arm!
Boop59

an idea for you
1. am yoga
2. i have a wonderful service dog, i sit too long and she will take her snout and shove it under my hand and bark as if to say get up you have sat too long

oh' b.t.w. i was diagnosed 6 yrs ago

Hey Kathy.

I was dx'ed with PD 7 years ago and felt pretty secure that all my symptoms were PD related. I wish. I was recently diagnosed with DRD or Dopamine Responsive Dystonia. This is fairly common in PD patients and can become painful make walking very difficult. I deal with it with yoga, sinemet and as little stress as possible.

This may not be your issue but please ask your doctor.
Don.

I have not read the answers posted here. excercise is important for pd. push it and walk as much as you can