What is Parkinsons-Disease

Parkinson's disease (paralysis agitans or PD) is a movement disorder often characterized by muscle rigidity, tremor, a slowing of physical movement (bradykinesia), and in extreme c...

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Tuesday November 24, 2009

Frustrating Stories

  • Journal Entry for April 30, 2008

    Wednesday, April 30, 2008

      I'M SO FRUSTRATED! I SAW MY DOC TODAY. SHE HAS DECIDED THAT SHE WANTS ME OFF OF ALL MY MEDS FOR FIBRO! APPARENTLY, THE NEURO SAID I NEEDED TO BE OFF OF ALL
    PAIN MEDS FOR PROPER EVALUATION OF MY CONDITION! THAT IS DEFINITELY NOT WHAT SHE SAID TO US! MY HUBBY HAS REQUESTED A COPY OF THE LETTER STATING THAT FACT!
    WHEN I SAID THAT I HAD BEEN DOING BETTER THAN I WAS A YEAR AGO, SHE SAID HOW W...

    3 Recommendations

    6 Comments

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  • Fighting the fight

    Tuesday, July 29, 2008 | A Frustrating story

    Having Pd is soo challenging and so draining at times. I have now been off the Mirapex since Friday and gang I am struggling BIG TIME... I feel all jittery, tired, no exhausted is better word for it, dizzy and my breathing feels very labored. I also get sweaty a lot. I feel so sad for folks that are addicted to meds....this is no picnic and on top of it all my motor skills well lets just say this...

    1 Recommendation

    4 Comments

  • A Very Bad Week...!

    Thursday, October 9, 2008 | A Frustrating story

    Hi  everyone,  it's  been  a  very  bad  week  for  me  so  far,  I've  got  a  terrible   cold/flu.  I  wasn't  feeling  too great  before  it  set  in.   It's  sapped  all  my  strength,  I  ache  like ...

    1 Recommendation

    8 Comments

  • Need some input

    Monday, October 20, 2008 | A Frustrating story

    Perhaps someone out there can remember when I had to finally put my hubby in a NH due to his combativeness.   After 3 months he finally stopped it and only grabs things and won't let go when he is taken out of bed or put into it.   Now his problem is such severe rigidity when at the table that it is almost a spell.  His legs and arms are straight out and his head is l...

    1 Recommendation

    5 Comments

  • A New Worker! This ones a keeper!

    Friday, October 31, 2008 | A Frustrating story

    Happy Halloween!!!
    I miss all of you something awful! I'm breaking in a new healthcare worker and she's a dream! Unfortunately, everytime I start with someone new I tend to overdo it myself. I'm also a little worse due to the weather being colder and the arthritis flares along with everything else!  I pray everyday and night for each and everyone of you..for strength when weak, fa...

    1 Recommendation

    3 Comments

  • stomps feet enough is enough

    Sunday, February 1, 2009 | A Frustrating story

    I have asked for prayers many times on this board to the point I am sure you are all tired of this and frankly so I am. I am very tired of health issues and life issues. I am having surgery (small minor no big deal) on February the 12. I am not really asking prayer for the surgery. What I am asking prayer for is me. I have never been afraid about my health I have always viewed as one more mountai...

    2 Recommendations

    21 Comments

  • Am I stupid?

    Friday, May 15, 2009 | A Frustrating story

    Ok...here is the story.  I have been talking to this guy for a year now, he lives 4 hrs away.  We have never seen each other in person, he says he is not ready for that just yet.  Ok fine...I can deal with that BUT when I send a text message asking him a question you would think he would answer but NO he doesnt. He completely ignores me and this isnt the first time. 
    He has tol...

    1 Recommendation

    11 Comments

  • Spinal Surgeon visit tomorrow.

    Tuesday, July 7, 2009 | A Frustrating story

    I am afraid.  Yes I know that God does not give the spirit of fear but of sound mind.  I can quote you lots of verses.  The thing is I have too many bad memories.  Tomorrow I go to the spine surgeon to discuss the ct scan.  Last time I had surgery I was suppose to have someone spend the night with me.  My hubby had a gout attack and he went to the doctor and she sent...

    1 Recommendation

    12 Comments

  • Same Old Stuff

    Friday, August 28, 2009 | A Frustrating story

    Another horrible night last night.  It seems to be happening every 3 days.  More fighting, more yelling and no closer to a solution.  I seem to be the "enemy".  I am spending the day today researching all of the meds that my husband takes.  I will keep you posted, wish me luck

    1 Recommendation

    3 Comments


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