Pancreatitis Support Group

Yes. I've had so many surgeries, my specialist told me the nerves may nerves register the elevated enzyme levels again. CP can 'wear out' the nerves as well. Have they done an MRCP/MRI to look for inflammation? I often have neither but still have pancreatic attacks.

I'm new and your caption caught my eye...because I always have normal blood work. it is so frustrating.
I had a CP attack several years ago and thing between I have no idea. If they don't see it in my blood they tell me it isn't that and make me feel like I'm carzy.
I have given up now.....I been since before Easter having this awful pain went to the ER twice....they did on the second visit an CT scan saw maybe a kidney stone or divities? not sure they were.
I went to my doctor several times in the pass month they still dont' know what is wrong with me.'
I got this new insurance that I didn't realize to see spiecialist it cost so much in co pays..sure I can go, but how many can I afford to see...right.
Well I kind of out of money so I cancle going to see the Urogolist, I did try but he broke down on the fwy and they cancel on me...I just didn't want to spend money I didn't have anyway..
so now I still have an GI doctor apt in a couple of weeks from now.
I had upper and lower scopes done three years ago...they found a few things...but they never said anything thing was wrong.

Well.....I am not sure how to deal with my pain I just stop talking to my family so they aren't interested anyway. I had dieahea thru most of last month now it is back to my normal....but the side and tummy ach is bad and then goes away....I don't throw up but get close too.
I have spots my family doctor push two weeks ago couldn't push on my tummy without me yelling out.
I had my gallbatter remove a year ago June 1, it did the same thing normal tests always...nothing....when the surgent got in he said it was ready to explode....I didn't know they did that until he said it.
He did say that my liver was enlarge to 21.5 but it doesn't show on any tests with blood work up....it always is normal..
I think my body hides things? Is what I think....it makes me took so bad....I'm telling the truth....it hurts...why can't they see this?

So I guess I will just wait maybe something will happen to make them see? I just don't know what to do or where to go any more.
I hope you find what you need.
I am not sure if I have this CP like you all...but I did before....
can it come and go and not show up for a while like a couple of years?
I just don't know....
thank you for listening to my ratting...and lettng me talk.

Thank you all for your replies and and advice. I just had a ultrasound and my Doc tells me everything looks great and that I am the picture of health. Yet I am in pain every time I eat. This is a new symptom after my last sever attack. I have an appointment to see a GI specialist on Friday. I am on the Mediterranean diet at the recommendation of my DR. Is there anything else I can do in the mean time to prevent the pain? and/or prevent more damage being done to my pancreas while all my Dr's put a name to what I know I have?

I agree it has to be pancreatitis, it could also be that a pseudo cyst has formed. I suffered with chronic pancreatitis after stones were lodged in my bile duct. I am now 6 weeks post TP-AIT surgery and I am now on my road to recovery. I do hope that they can help you and that this pain that you are having will soon be a thing of the past. You will be in my prayers.

Correction..Yesterday I was just 6 months post surgery not weeks. Sorry