Pacemakers Support Group

Hi, I have had my pacemaker since January, 2006. How long have you had yours?

Hi Sue,

I have an ICD which is part pacemaker part defibrillator.. I've had mine since 1997.. I'm actually on my third one.. and this one is giving me some problems but we're working through it.

What other support groups online do you belong too?

Hope you're well..
Hugs
Renee

I've had mine since July 2006.
I belong to implantable.com and also pacemakerclub.com. I hardly think about it anymore, although I might feel differtly about an ICD. Has yours ever gone off, Renee?

My pacemaker is also part ICD. Mine has never gone off.

I had my vns pacemaker since 1999 for seizures
no I do not belong to any other websites my ex tricked me into this to help patients that want the vns pacemaker for seizure disorders.

I got my Medtronic ICD in Nov 2006. I got one of the bad ones. They decided to turn the settings lower instead of changing it. All my checkups have been ok so far. It's never gone off, but I woke up one night sleeping on my stomach, I'd had what they called a Bump. When the ICD got crowded it went into a little bump. Didn't hurt at all. I try to sleep on my side or back.

I've had my Pacemaker since July..then had a revision in July!!! My lead shifted. I usually feel okay but get dizzy spells that my Cardio guy says has nothing to do with the Pacemaker. I had a 3rd degree block out of the blue the weekend of the 4th. Anyone else get dizzy?

That's funny....I USED to get dizzy before I got the pacemaker. But, not anymore.

Hi Nana,

Yes it has gone off twice in May and that is when they put a new medtronic Dual Chamber device in and added an Atrial lead- never had a problem before but now this new atrial lead is really bugging me... ugh

The shocks them self are scary but you get a sense of thank goodness I had my device otherwise I wouldn't be here.. :)

Hope your'e well .. :)

Hugs
Renee

Hi there,
Im 30yrs old. I have had a pacemake since I was 21. I have complete heart block.
HI to everyone