What is Ovarian Cancer
Ovarian cancer is a malignant ovarian neoplasm (an abnormal growth located on the ovaries). It is the fifth leading cause of cancer death in women, the leading cause of death from ...
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Dear DS Friends,
I`ve just finished 18 treatments of carboplatin/taxol and was doing well. My CA125 numbers were 7500 before my hysterectomy/debulking, 1500 post surgery, then 450 after 1st cycyle of chemo. They eventually got to 114 but started to climb at the end of the 3rd chemo cycle and continued a slow increase. Last week they were up to 231 and I`m awaiting this week`s number today.The docs at Sloan have put me in the HIGH RISK MINORITY due to my resistance to the last few sessions of chemo, which terrifies me. Is there anyone out there who DIDN`T go into remission after their fist phases of chemo or whose CA 125 numbers DIDN`T get into a normal range? I have a CT this Friday and follow up consult on Monday to come up with plan 2.I guess I`m scared and need someone I can identify with, so I don`t feel so ALONE in the MINORITY. Thanks for any stories you can share and Happy Thanksgiving to All... xxLinda Posted on 11/26/08, 07:11 am |
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Hi there,
Well, I did have a point in time where there was no evidence of disease (my Dr. says with Ovarian Cancer one never really does go into remission) That said, I have been living with rather high CA125 numbers and probably am the most closely related to your case out of this group. Last winter I opted to wait until Spring to start chemo as I already suffer from Seasonal Affective Disorder. My numbers were in up to nearly 3000 as I recall. At times this number has gone down, all by itself. My latest treatments do not show a speedy downturn, and I am "stablized" (sp?) at around 400. Now I am taking off the month of December. What I feel is that one has to live the days we have. I feel more ill when I am on chemo than I do with a high CA125. I am just hopeful to be able to continue this way until there is a better treatment available. You must ask your Dr. if they are going to treat it as a chronic disease. No one knows, for sure, how long our life will be. It's like I tell all my friends, all of us, cancer or no, are terminal! Use the time we do have to enjoy. And I also feel it's important to take anti-anxiety drugs when you need them. I don't have an addictive personality, so for me, it's rarely used...but here if I need it. hope his helps, I truly feel for you and the fear. I don't experience the gut-wrenching fear that often...but when I do, I feel very much alone. Glad you are on this site. hugs and love, lindamae 
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