What is Osteogenesis Imperfecta
Osteogenesis imperfecta is a group of genetic bone disorders. It is one of the brittle bone diseases. People with OI either have less collagen than normal or the quality is poorer ...
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Hello to all. I am new here but not at all new to Osteogenesis Imperfecta. I am the mother of a son who is 38 years old. We both live in Texas in the Houston area.
Just wanted to say hello and offer any help I can to all your young parents who have kids with OI. I know how you feel. I have been there ,done that , ask that and lived through it.. For me OI was not the end of the world, although it seemed like it at the time it started It was the beginning of a beautiful rainbow and an adventure of rewards I have written a little bit of my experience in my journal feel free to read it. It is only the beginning of the journey starting 38 years ago. I will add more as time goes on. Posted on 01/05/09, 06:01 pm |
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