What is Osteogenesis Imperfecta

Osteogenesis imperfecta is a group of genetic bone disorders. It is one of the brittle bone diseases. People with OI either have less collagen than normal or the quality is poorer ...

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ds via google
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KrymsonBl... View More Posts I just wanted to warn everyone that your DS profile and other information may be available for anyone to look at on the Internet. I had heard for a while that DS isn't a secure site. But I didn't realize how bad it was until I googled my screen name. The following popped up:
Desertdancer's Profile on Daily Strength (with the first few sentences of my profile).

I clicked on the link and my entire profile page popped up. The only thing not available for public viewing were my journals because I had locked them to friends only.

I feel violated. One of the reasons I felt safe on DS was that I believed the information I posted was only available to other DS members. Not true.

I ask that anyone who's concerned about this issue send a message to DS expressing their feelings and asking that they make this site secure. I already have

origianl post by: DesertDancer
Posted on 02/24/08, 08:02 pm
Posted on 02/25/08, 08:02 am
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Reminder: This is a support group for Osteogenesis Imperfecta. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Comment:
Email me when others reply to this topic help
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Reply #1 - 02/25/08  3:55pm
" i dont get it. what happened? "
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Reply #2 - 07/06/08  3:21pm
" najet96 some pepole here dont want the world seeing there info for personal reasons and basicly your stuff can be seen by non dailystrength mebers if its not locked. "

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