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Discussion:
How many of you have kids with epilepsy or seizure
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Son may be having what is known as absence seizures where there may not be physical signs, unless you see the split second stare. These can occur hundreds of times throughout the day and while he's asleep. They effect the entire brain. He had polyspikes in an EEG during the photic test and stage 2 sleep. Whether or not they are epilepsy or not we are waiting for a neurologist to call with an appt. But from what I am learning these polyspikes can cause behavioral, social, and learning disiabilities in children. So I was hoping some of you may know or have kids with epilepsy/seizures who experience behavioral issues and if so and what types of behavioral issues are associated with it and when or what triggers the behavior to change? What have you found effective to help miminize the behavioral issues?
Posted on 08/07/12, 11:48 am
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Reply #1 - 08/07/12  1:04pm
" My son does not have siezures, but when he was little a neurologist told me that his rage attacks were a form of non-epileptic siezure. "
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Reply #2 - 08/07/12  1:14pm
" Patty thank you for your reply--what your son's rage like? Was is verbal, physical, did certain things escalate his anger? Did he out grow it? "
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Reply #3 - 08/07/12  8:50pm
" The rage attacks happened whenever he was told something he didn't like, or he was disciplined for something. He would scream, throw things, and hurt people. It started when he was about three. As long as nobody got on to him for anything, and let him have what he wanted, they didn't occur. I didn't find out that they were a charactaristic of ODD until he was 14 or 15. I'm sorry to say, I don't have any good news here... I'm not one of the ones who found something that helped. The rage attacks did happen fewer and farther between after he turned 16, but because he's bigger and smarter, he could really direct his anger into something big. I'm really sorry, I wish I could offer some shiny "It will get better as he gets older, he'll grow out of it..." And maybe the fact that you know about it while he's still young, you've found this site, you're seeking help. I'm sure you'll have a better outcome than I did... "
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Reply #4 - 08/08/12  8:27am
" We have noticed now that when he's being challenged to do things he's supposed to do, or can't get something he wants he has the issues with the rage. I think I am steps ahead of where you were, since I discovered his ODD issues sooner--and thank goodness because he is already a big boy and can take me down in a heart beat. Luckily he has not shown any real violence--he will hit at us but due to his coordination issues and his lack of distance he misses more times then connects. Unfortunately he has gotten my mother a couple of times because she can't move quick enough. We try to diffuse the situation with techniques we learned from empowering parents but due to the fact he has a Mixed Language disorder it doesn't always work.
Does your son still have seizures?

The dr that dictated his EEG has agreed to see him as a patient, thank goodness because finding pediatric neurologist in our area are slim. "
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Reply #5 - 08/10/12  10:12pm
" Oh, no, Andrew's never had regular seizures at all. He gets Depakote, which is a seizure/bipolar medication, but it's for his bipolar. I know now, from nursing school, that the part of the brain that makes a person have a seizure is the same part and handles moods, mood disorders, and the rage attacks. So that makes sense now why the doctor would say the rage attacks were a sort of nonepileptic seizure.
I got to talk to Andrew today. He says he's doing good. He says he drew me some pictures the other day, so I'm looking forward to getting them. My son is in jail. I'm really hoping it turns him around but I'm kind of trying to guard myself too, because I don't really think it will. I don't know.
But like I said, you and all of the people here have an advantage that I didn't have. You found out there was something wrong way before I did, so you're on your way to helping your children. "
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Reply #6 - 08/22/12  7:23am
" Hi
My teenage daughter has ADHD and ODD (diagnosed when a toddler). She had a seizure very young (a severe one) but they have never connected the two, nor spoken of wether it could have been traumatizing (she was almost two). She had her huge temper before that seizure. Once when she was about four I got them to check if she had some kind of sleeping seizure (cant remember the name) but it turned out she did not. She has always had sleeping problems.
However, I wanted to tell you that things have been going more or less well the last couple of 1-2 years. She has attacked me but If I do nothing to defend myself she stops quickly (I think cause she is more mature).
Last winter she had no medication and I had difficulties getting her to do stuff (homework, pick up her clothes, shower etc) but she started meds again this spring and is doing better.
I felt it helped reading beyond consequenses logic and control. And I definetly feel that I have more success when I reach out to her with compassion and shower her with love then when I try the normal behavioral therapy.
Anyhow, Im in the process of moving and freaking out because of stress but just wanted to let you know that sometimes things do get better. Her doctor told me that sometimes they do calm down when the hormones kick in.
She has been more supportive and loving the last couple of months than I could ever have hoped for.
So just hang in there, two years ago I felt hopeless and considered hospitalizing her or separating my children (so the younger one would not endure abuse).
Best wishes to you and your family! "
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Reply #7 - 08/29/12  12:03pm
" My son has the right frontal lobe.. Can you tell me where your Sons are.. "

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