What is Nystagmus
Nystagmus is rapid involuntary rhythmic eye movement, with the eyes moving quickly in one direction (quick phase), and then slowly in the other (slow phase). The direction of nysta...
Join Now
|
How to better understand what my son sees!
|
Watch this |
| View More Posts Ignore |
It was recently explained to that my 18mo. old w/ocular albinism does not see well, other than close up. The pediatrcian was asking me if he points at things. No he doesnt.I spoke w/his vision therapist about this and she pretty much told me he wont point to the sky cause he doesnt see it. He wont point to things around the house because he doesnt see things unless he Is close up.Would anyone please help me understand what to do to help him in anyway.Its hard to understand what he sees and how I could do the most to accomodate his needs. Please help. Beckie
Posted on 04/21/08, 08:04 am |
| 2 Replies | Add Your Advice |
| View More Posts Ignore |
My son has the same thing. We noticed the eye movements when he was a few weeks old. He sees a specialist annually and he does tests but that's about all. When he was little he really had a hard time seeing small things, and certain bright colors are very annoying to him.He is 12 now and he functions like anyone else, he just sees thing different than we do.He plays football and he can see things at a distance but obviously they aren't clear.We do have some issues at school.All through Elementary school his teachers would allow him to get up and move to where he could see better.Now that he is in middle school, his teachers don't seem to want to work with him and expect him to stay in his seat.Which I understand that, but at the same time they need to understand what he is dealing with. My concern is when he gets older.. Will he be able to drive? What kind of career will he have? His Dr. seems to feel that he will be able to drive, but only in the day time.In the state of MD, you can't drive at night if your vision is worse that 20/40. But it doesn't say what it needs to be to drive during the day. His vision is 20/60. So I don't know how that will come in to play, because obviously he can not pass the eye exam. So I thought maybe we should try for disability benefits so he has savings for his future in case he can't work or go into the military, and depending on what kind of work he may be able to do. But again, I found on the MD site that vision needs to be 20/80 or worse to apply for benefits. So we are kind of stuck in between. I just worry about his future. 
|
|
|
|
||
| View More Posts Ignore |
My son has Optic nerve hypoplasia and nystagmus. We think he can only focus his eyes on things that are about 4-6 inches away from his face. When I offer him a toy, i hold it right up to his face. When I talk to him, I say words right up in his face so he can see how my mouth moves to form words. My son's eyesight seems to be improving. He is developmentally delayed because of his poor vision, but he is doing well. Also, if a person shoves a bright object, or gets in his face too quick and says something, it will scare my son so bad he'll start screaming. Cause he doesn't really know your there until your RIGHT THERE ya know?
|
|
|
|
||
| Add Your Advice |
