Neurofibromatosis Support Group
Neurofibromatosis is usually noncancerous. There are three types of this condition. Type 1 usually appears in childhood, while Types 2 and 3 appear in early adulthood. Type 1 can cause bone deformities, learning disabilities, and high blood pressure. Type 2 can cause hearing loss, vision loss, and difficulty with balance. Type 3 can cause chronic pain throughout the body....
Genetic & Metabolic
Neurofibromatosis Support Group

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Has anyone else been told they can not drive because of nf-1 ?my last mri showed leison on my frontal lobe. and because... READ MORE
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Does anyone know if having more children makes the neurofibromatosis worse? I want to have at least two more children... READ MORE
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Hi!!! I'm 25 yrs old from Melbourne AUSTRALIA with NF1. Like I briefly said on my profile that I have no lumps but I'm... READ MORE
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i hate having headich all the time and leaving with nf aint easy is a struggle in everyday life ,why do we suffer and... READ MORE
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Hi all,Im new to this group and have many spinal tumors and had surgery last Feb. Recovered well and then I awoke on... READ MORE
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Hello everybody, I'm Sidney as I was born with NF1. I've had numors surgries and treatments and have had some of my... READ MORE
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Hello, Does anyone get the feeling like they are alone in this? I have no one that I know that deals with this disease.... READ MORE
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i am a virgin do I need to get a pap smear... Done
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recently i have been blacking out, as a result I have had to go to hospital, all my tests that are conducted (pee test,... READ MORE
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I am a 47 yr female with NF1. I have had a lot of struggles over the years. Just had spinal surgery in March to have... READ MORE
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I am getting a hard time with my leg . It was tingling throughout the previous 3 weeks and now it gets swelled and... READ MORE
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i have about 11 NF1 tumors up my spine and they are causing chronic pain, the doctors that i have gone to see are not... READ MORE
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I've been having some problems with Dizzyness and loss of coordination on my left side we thought I wa possibly having... READ MORE
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Hello,I noticed today when trying to perform a repair on a computer that I had quite a shake in my hands.This... READ MORE
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For the past few months I've been trying to seek treatment. it took many years to finally pick up the courage and see a... READ MORE
